Evidence map›Paper›PMID 42251530›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Assessing Shifts in Research Priority Areas From the Neurological Community Before and After the COVID-19 Pandemic.

Leah Dempsey, Travis Cruickshank, Mitchell Turner, Manja Laws, Danielle Bartlett, Barby Singer, Onno van der Groen, Moira Sim, Mandy Stanley

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In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

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No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Leah DempseyCentre for Precision Health, Edith Cowan University, Joondalup, Western Australia, Australia.
Travis CruickshankCentre for Precision Health, Edith Cowan University, Joondalup, Western Australia, Australia.
Mitchell TurnerCentre for Precision Health, Edith Cowan University, Joondalup, Western Australia, Australia.ORCID 0000-0001-6406-1273
Manja LawsCentre for Precision Health, Edith Cowan University, Joondalup, Western Australia, Australia.
Danielle BartlettSchool of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia.
Barby SingerSchool of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia.
Onno van der GroenSchool of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia.
Moira SimSchool of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia.
Mandy StanleySchool of Medical and Health Sciences, Edith Cowan University, Perth, Western Australia, Australia.ORCID 0000-0002-7958-5181

Funding

This study was supported by grant funding from MSWA (G1004557).
6 · The paper itself

Abstract

introductionPeople living with a neurological condition face many difficulties in daily life, impacting their function and quality of life (QoL). There is currently no cure to many neurological conditions, therefore identifying interventions to improve QoL is of high importance. COVID-19 changed society in many ways and understanding the research priorities from the neurological community post pandemic is urgently needed to ensure resources are used efficiently and aligned with the needs and priorities of the community. To better understand the priority areas, it is essential for individuals with lived experience to have input into priority areas for research. Therefore, the aim of this study was to identify the top research priorities for the neurological community in Australia.

methodsThis priority setting study had two phases. The first phase comprised a face-to-face full day workshop held in late 2019 where participants were led through rounds of brainstorming, categorising and prioritising to reach consensus on a set of research priorities. The second phase was conducted in 2023 with an online survey distributed widely to gauge whether the initial set of research priorities had changed following the event of the global pandemic.

resultsOn completion of the 2019 workshop there were a total of 27 priority areas with the top priority being diagnosis and early intervention. The 2023 survey results saw mental health and wellbeing moving up one position to become the highest priority.

conclusionMental health and wellbeing moving from second in 2019 to first in 2023, shows a need for more resources and research into this area for the neurological community. Many participants suggested that mental health is at the centre of their condition and when their mental health is poor it impacts all areas of their life. The research priorities identified in this study provide direction for researchers about what is important to people living with a range of neurological conditions, allowing researchers to focus on the needs of this community. PATIENT OR PUBLIC CONTRIBUTION: The data collection phase was planned in collaboration with the Consumer and Community Health Research Network, a consumer advocacy organisation. We partnered with people living with neurological conditions for the data collection for both phases and they gave feedback on the findings.

Indexed as

Biomedical ResearchCOVID-19Health PrioritiesNervous System DiseasesResearchAustraliaHumansPandemicsQuality of LifeSARS-CoV-2consumersneurological conditionsqualitativeresearch priorities

Identifiers

PMID42251530
PMCPMC13242650

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.