Evidence map›Paper›PMID 42243604›Full record

Trial reportEuropean geriatric medicine2026

Giving room for the existential response to serious illness: experiences with advance care planning among home-dwelling older persons admitted to acute geriatric care.

Siri Færden Westbye, Maria Romøren, Siri Rostoft, Lisbeth Thoresen, Karin Berg Hermansen, Hege Ihle-Hansen, Trygve Johannes Lereim Sævareid, Reidar Pedersen

Abstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in European geriatric medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Siri Færden WestbyeCentre for Medical Ethics, Institute of Health and Society, Faculty of Medicine, University of Oslo, Postboks 1130, Blindern, 0318, Oslo, Norway. s.f.westbye@medisin.uio.no.ORCID http://orcid.org/0009-0006-7774-0180
Maria RomørenCentre for Medical Ethics, Institute of Health and Society, Faculty of Medicine, University of Oslo, Postboks 1130, Blindern, 0318, Oslo, Norway.
Siri RostoftDepartment of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
Lisbeth ThoresenDepartment of Public Health Science and Interdisciplinary Health Science, Faculty of Medicine, Institute of Health and Society, University of Oslo, Oslo, Norway.
Karin Berg HermansenDepartment of Health Sciences, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Aalesund, Norway.
Hege Ihle-HansenCentre for Medical Ethics, Institute of Health and Society, Faculty of Medicine, University of Oslo, Postboks 1130, Blindern, 0318, Oslo, Norway.
Trygve Johannes Lereim SævareidDepartment of Health and Nursing Science, University of Agder, Kristiansand, Norway.
Reidar PedersenCentre for Medical Ethics, Institute of Health and Society, Faculty of Medicine, University of Oslo, Postboks 1130, Blindern, 0318, Oslo, Norway.

Funding

Norges Forskningsråd 302880
6 · The paper itself

Abstract

purposeAdvance care planning (ACP) enables individuals to elicit values and preferences regarding medical treatment and care, and to record and review them before loss of capacity. In Norway as in most European countries, ACP is rarely performed. This is worrisome given the benefits of ACP, and the lack of research and understanding of the patient's perspective, particularly in contexts where ACP is new. This paper is the first to explore how the initiation of ACP is experienced by older persons living at home with frailty who are encountering ACP for the first time, using a concept of ACP that extends beyond end-of-life decision-making.

methodsThis qualitative study is part of a cluster-randomized controlled trial in which home-dwelling patients admitted to acute geriatric units were invited to participate in the initiation of ACP with their next of kin. We interviewed ten of these patients about their experiences and conducted a reflexive thematic analysis.

resultsThe patients reported that the initiation of ACP fostered trust and confidence, promoted emancipation and insight, enabled them to remain at home longer, opened up space for emotional and existential issues as precursors to decision-making, and promoted a more direct and honest connection with the physician.

conclusionThe initiation of ACP can be integrated into routine geriatric care and may provide important benefits for patients by filling gaps and adding new dimensions to usual care. ACP is an underused tool in communication and decisions concerning severe illness that more patients could benefit from. CLINICALTRIALS: gov Identifier NTCT05681585. Registered 03.01.23.

Indexed as

Advance Care PlanningExistentialismAgedAged, 80 and overAging in PlaceDecision MakingFemaleFrail ElderlyHumansMaleNorwayQualitative ResearchAdvance care planningAutonomyCommunity-dwellingFrailtyQualitative researchShared decision-making

Identifiers

PMID42243604
PMCPMC13562197

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.