Evidence map›Paper›PMID 42242876›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2026

Facilitating Research Participation: How Researchers Support People With Communication Support Needs to Decide to Participate.

Deborah L Lutz, Karen R Fisher

Abstract read
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Deborah L LutzCatholic University of Applied Sciences, Freiburg, Germany.ORCID https://orcid.org/0000-0002-8856-0795
Karen R FisherUniversity of New South Wales Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0002-0828-6395

Funding

UNSW Sydney and the Faculty of Arts and Social Sciences scholarship
6 · The paper itself

Abstract

backgroundEvidence is needed about the practicalities of how researchers support people with intellectual disabilities and communication support needs to facilitate their choice to participate in research. What are the elements of effective support from researchers that build on trusted relationships between the person and supporters for that decision?

methodThe article applies an analytical framework about effective support for decision making to qualitative data about researchers' support for choices to participate in three ethnographic case studies.

resultsThe analysis found researchers became supporters in the person's decision making by directly supporting the person and engaging with their supporters in ways that prioritised the person's rights.

conclusionThe analysis extends the framework by finding that when researchers position themselves as supporters, they can leverage trusted relationships and demonstrate to facilitate the person's right to choose whether to participate in research, representing a methodological and ethical advance for inclusive research practice.

Indexed as

CommunicationDecision MakingIntellectual DisabilityPatient ParticipationResearch PersonnelHumansQualitative Researchcommunication support needsdecision makingintellectual disabilitiesqualitative field researchresearch participationsupporters

Identifiers

PMID42242876
PMCPMC13238441

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.