Evidence map›Paper›PMID 42232365›Full record

ArticleHealth care transitions2026

Evaluating the implementation of self-management skill readiness assessment for adolescents and young adults with spina bifida.

Megan Gallagher, Rhonda G Cady

Abstract read
In one paragraph

Article in Health care transitions, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Megan GallagherResearch Department, Gillette Children's, St. Paul, MN, USA.
Rhonda G CadyResearch Department, Gillette Children's, St. Paul, MN, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Spina bifida (SB) is a complex condition affecting brain, bowel, bladder, cognitive, motor, and sensory functions. Evidence shows that adolescents and young adults (AYAs) with SB who master self-management of their complex condition experience better health outcomes. Assessment and support of AYA self-management using tools like the Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) is recommended by the Spina Bifida Association. Methods: An explanatory sequential mixed-methods evaluation grounded in the RE-AIM framework investigated reach, effectiveness, adoption, and implementation of the TRAQ-SB into a multi-disciplinary specialty SB clinic. Medical record chart review quantified RE-AIM metrics and informed design of the qualitative strand, focus group sessions for three distinct 'users' of the TRAQ-SB: AYAs with SB, their parents, and their clinicians. Findings: Self-management skill acquisition is a positive step towards AYA independence, but various factors impact this move. While most AYA with SB completed the TRAQ-SB, only 25% of clinicians documented discussion of the tool to inform the AYA plan of care. This indicates inadequate clinician adoption of the TRAQ-SB. Parents of AYA with SB that depend on others for self-care desire a different assessment and indicate reduced effectiveness of the TRAQ-SB. AYA with SB want the 'gentleness and tenderness' of the pediatric care system to extend to the adult care system. Conclusions: Our evaluation provided insight into

Indexed as

AdolescentsHealthcare transitionSpina bifidaTransition readinessYoung adults

Identifiers

PMID42232365
PMCPMC13224000

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.