Evidence map›Paper›PMID 42218737›Full record

ArticleJAMA health forum2026

Institutional Special Needs Plans and End-of-Life Outcomes for Nursing Home Residents With Dementia.

Elizabeth M White, Pedro L Gozalo, Christopher M Santostefano, Cyrus M Kosar, Brian E McGarry, Fangli Geng, Robert Zorowitz, David C Grabowski, Vincent Mor, Momotazur Rahman

Erratum issuedAbstract read
In one paragraph

Article in JAMA health forum, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Error in Table 3.JAMA health forum · 2026
    Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

10 authors.

Elizabeth M WhiteDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Pedro L GozaloDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Christopher M SantostefanoDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Cyrus M KosarDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Brian E McGarryDepartment of Medicine, University of Rochester, Rochester, New York.
Fangli GengDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Robert ZorowitzHackensack Meridian School of Medicine, Nutley, New Jersey.
David C GrabowskiDepartment of Health Care Policy, Harvard Medical School, Boston, Massachusetts.
Vincent MorDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.
Momotazur RahmanDepartment of Health Services, Policy, and Practice, Brown University School of Public Health, Providence, Rhode Island.

Funding

Assessing the Effects of Institutional Special Need Plan (I-SNP) Enrollment on Quality of Long-Term and End-of-Life care for Elderly Individuals with DementiaR01AG082098 · NIA · BROWN UNIVERSITY · PI Md Momotazur Rahman · 2024 to 2026
$2.0M
Impact of Medicare and Medicaid Financing Initiatives on Post-acute and Long-term Care for Persons Living with DementiaR01AG089051 · NIA · BROWN UNIVERSITY · PI Cyrus M Kosar, Md Momotazur Rahman · 2024 to 2026
$1.8M
NIA NIH HHS R01 AG082098NIA NIH HHS R01 AG089051
6 · The paper itself

Abstract

Importance: Nursing home residents with dementia are often unnecessarily hospitalized at the end of life. Institutional Special Needs Plans (I-SNPs) are a type of Medicare Advantage plan for long-term nursing home residents that use advanced practice clinicians to manage care. Studies have demonstrated the effectiveness of the original and largest I-SNP operated by UnitedHealthcare (UHC), but there has been minimal evaluation of non-UHC I-SNPs, which have driven recent growth, nor specific focus on end-of-life outcomes. Objective: To examine the association of I-SNP enrollment with end-of-life outcomes for nursing home residents with dementia, separately for UHC and non-UHC I-SNPs. Design, Setting, and Participants: This retrospective cohort study used 2010 to 2022 Medicare data on 1.4 million long-stay nursing home residents with dementia who died between 2013 and 2022. Facility-level and patient-level selection bias were addressed with cross-temporal propensity score matching and difference-in-differences models. Both the direct effects of I-SNP enrollment, as well as the indirect (ie, spillover) effects on nonenrollees residing in nursing homes offering I-SNPs were assessed. Variation in these relationships by I-SNP maturity was also examined. Data were analyzed from November 2024 to April 2026. Exposure: Four I-SNP exposure categories: UHC I-SNP enrollment and spillover; non-UHC I-SNP enrollment and spillover. Main Outcomes and Measures: Hospitalization and hospice use in the last month of life. Results: The study cohort included 1 415 265 long-stay nursing home residents with dementia who died between 2013 and 2022. The unadjusted hospitalization rate in the last 30 days of life was 27.7%. UHC I-SNP enrollment was associated with a 9.0-percentage point (pp) reduction in hospitalization (95% CI, -10.3 pp to -7.7 pp) while non-UHC I-SNP enrollment was associated with a 5.9-pp reduction (95% CI, -8.4 pp to -3.5 pp). The spillover effect on nonenrollees in nursing homes offering a UHC I-SNP was a 1.7-pp (95% CI, -2.4 pp to -1.1 pp) decline in hospitalizations; the spillover effect in non-UHC nursing homes was not statistically significant. Similar trends appeared with hospitalization in the last 3 days of life, intensive care unit admission, and mechanical ventilation, but there was no association with hospice use. The reduction in hospitalizations increased in the 3 years after nursing home I-SNP adoption, then plateaued. Conclusions and Relevance: In this retrospective cohort study, I-SNP enrollment was associated with significantly fewer hospitalizations for nursing home residents with dementia at the end of life, with effect sizes larger for UHC vs non-UHC I-SNPs. Plan maturity and volume are likely important factors impacting success.

Indexed as

DementiaMedicare Part CNursing HomesTerminal CareAgedAged, 80 and overFemaleHospitalizationHumansMaleNursing Home ResidentsRetrospective StudiesUnited States

Identifiers

PMID42218737
PMCPMC13223876

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.