Evidence map›Paper›PMID 42211240›Full record

ArticleGynecologic oncology reports2026

A novel surname-based methodology to improve the disaggregation of Asian American ethnic subgroups in patients with ovarian cancer.

Sarah S Lee, Heather T Gold, Lan N Ðoàn, Simona C Kwon, Bhavana Pothuri

Abstract read
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Article in Gynecologic oncology reports, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Sarah S LeeDepartment of Obstetrics and Gynecology, Division of Gynecologic Oncology, New York University Grossman School of Medicine, 240 East 38th Street, 20th Floor, New York, NY 10016, United States.
Heather T GoldDepartment of Population Health, Section on Value and Effectiveness Research, New York University Grossman School of Medicine, 227 East 30th Street, Sixth Floor, New York, NY 10016, United States.
Lan N ÐoànDepartment of Population Health, Section for Health Equity, New York University Grossman School of Medicine, 180 Madison Avenue, New York, NY 10016, United States.
Simona C KwonDepartment of Population Health, Section for Health Equity, New York University Grossman School of Medicine, 180 Madison Avenue, New York, NY 10016, United States.
Bhavana PothuriDepartment of Obstetrics and Gynecology, Division of Gynecologic Oncology, New York University Grossman School of Medicine, 240 East 38th Street, 20th Floor, New York, NY 10016, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: Over the last 30 years, only two-thirds of gynecologic oncology publications reported on race/ethnicity. Demographic reporting of disaggregated racial/ethnic groups can elucidate disparities and elicit unique insights into care. We aimed to improve the accuracy of race and ethnicity reporting in patients with ovarian cancer by integrating self-reported data with a novel surname-based methodology. Methods: Patients with ovarian cancer between 2011 and 2023 were identified from our tumor registry. Self-reported race/ethnicity data were extracted from electronic health records. A validated surname list derived from Social Security Administration files was used to disaggregate Asian American patients and those from Other/Unknown races into the following ethnic subgroups: Chinese, Filipino, Indian, Japanese, Korean, and Vietnamese. The effectiveness of ethnic subgroup disaggregation was assessed among Asian American patients. Results: Among 813 patients identified, the self-reported racial/ethnic distribution was: 10% (n = 81) Asian, 12% (n = 96) Hispanic, 1% (n = 7) Multiracial, <1% (n = 1) non-Hispanic Native Hawaiian or Pacific Islander, 8% (n = 61) non-Hispanic Black, and 64% (n = 520) non-Hispanic White. Of the 6% (n = 47) of patients of Other/Unknown race, surname analysis reclassified 5 (11%) patients as Asian American. Among the 89 self-identified Asian American patients, surname analysis disaggregated more patients (74%, n = 66) into ethnic subgroups than self-reported race/ethnicity (61%, n = 55). Combining both methodologies enabled the disaggregation of 91% (n = 81) of Asian American patients. Concordance between surname-based and self-reported methods was high (Spearman's Rho = 0.84). Conclusion: Integrating self-reported race/ethnicity with surname-based analysis improved the accuracy of racial classification and Asian American ethnic subgroup disaggregation. Leveraging both approaches can enhance the granularity and accuracy of demographic reporting.

Indexed as

Demographic reportingDisaggregationEthnicityOvarian cancerRaceSurname

Identifiers

PMID42211240
PMCPMC13213224

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.