Evidence map›Paper›PMID 42210449›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2026

Development and Psychometric Evaluation of the TOGETHER Family-Reported Experience Measure of Nurse-Facilitated Family Engagement in Adult Acute Care.

Julie Cussen, Michael J Ireland, Georgia Tobiano, Amanda Corley, Anne M Eskes, Whitney Kelly, Lachlan Kelly, Jolanda M Maaskant, Benjamin R Mackie, Thom J T Westdorp and 1 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

11 authors.

Julie CussenGold Coast University Hospital, Gold Coast Hospital and Health Service, Gold Coast, Australia.ORCID 0000-0003-4139-6403
Michael J IrelandSchool of Nursing and Midwifery, Griffith University, Gold Coast, Australia.ORCID 0000-0001-6064-3575
Georgia TobianoGold Coast University Hospital, Gold Coast Hospital and Health Service, Gold Coast, Australia.ORCID 0000-0001-5437-0777
Amanda CorleySchool of Nursing and Midwifery, Griffith University, Gold Coast, Australia.ORCID 0000-0002-4250-4077
Anne M EskesDepartment of Surgery, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health, Amsterdam, the Netherlands.ORCID 0000-0003-1605-0195
Whitney KellyYoung Allies Foundation LTD, Brisbane, Australia.
Lachlan KellyYoung Allies Foundation LTD, Brisbane, Australia.
Jolanda M MaaskantDepartment of Internal Medicine, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.ORCID 0000-0002-1130-1795
Benjamin R MackieSchool of Nursing and Midwifery, Griffith University, Gold Coast, Australia.ORCID 0000-0002-7662-3357
Thom J T WestdorpDepartment of Surgery, Amsterdam UMC, University of Amsterdam, Amsterdam Public Health, Amsterdam, the Netherlands.ORCID 0009-0002-8517-3623
Andrea P MarshallGold Coast University Hospital, Gold Coast Hospital and Health Service, Gold Coast, Australia.ORCID 0000-0001-7692-403X

Funding

Gold Coast Health Collaborative Research Grant Scheme RGS2022-036
6 · The paper itself

Abstract

backgroundFamily engagement improves outcomes, shortens hospital stays, and enhances patient and family experiences, yet remains inconsistently enacted despite nurses' pivotal role. Existing instruments focus on paediatrics or critical care, measure activation rather than enacted engagement, or lack robust psychometric evidence. No family-reported measure captures nurse-facilitated engagement in general adult acute care.

objectiveTo develop and psychometrically evaluate a family-reported experience measure of nurse-facilitated family engagement in adult acute care.

methodsA two-phase mixed-methods instrument development was completed. Phase 1 involved construct definition, item generation, expert review (content validity), and cognitive interviews. Phase 2 used a cross-sectional survey (n = 237) to test factor structure, reliability, and construct (convergent and discriminant) validity.

resultsTOGETHER (TOwards Gathering Evidence to evaluaTe in-Hospital family partnERships) is a 23-item scale. Structural analysis of the 20-item analytic core (three context-contingent items retained for content coverage but excluded a priori from factor modelling) supported a bifactor model comprising a general factor ('family partnerships') and two specific factors ('communication', 'collaboration'). Model fit was good (CFI = 0.992, RMSEA = 0.060), and total-score reliability was adequate (ω = 0.79). Specific factors were moderately correlated (r = 0.61).

conclusionTOGETHER provides a total score for evaluation and monitoring of nurse-facilitated family engagement in adult acute care; domain-level patterns may be examined descriptively but lack sufficient reliability for standalone scoring. The present evidence applies to the English-language version only. Cross-site benchmarking, cross-group comparison, and cross-linguistic extension require further validation. PATIENT OR PUBLIC CONTRIBUTION: Family caregivers with lived experience collaborated as study investigators throughout the study. They contributed lived healthcare and caregiving experience as well as specialist expertise in person-centred care policy. Their involvement spanned study conduct, item development and manuscript preparation, including review of the final manuscript prior to submission. An additional group of people with lived experience provided their perspectives on the instrument during pretesting.

Indexed as

FamilyProfessional-Family RelationsPsychometricsAdultAgedCross-Sectional StudiesFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and Questionnairesacute carefamily engagementperson‐centred carescale development

Identifiers

PMID42210449
PMCPMC13240197

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.