ArticleBMJ open2026
Caregivers' confidence in and preferences for reporting rehabilitation service use following paediatric traumatic brain injury: a qualitative study for measure development.
Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo evaluate caregivers' confidence in accurately reporting rehabilitation service use for paediatric traumatic brain injury (TBI) and to determine their preferences for measure scope, granularity and administration.
designThis qualitative descriptive study conducted remote, semistructured individual interviews with caregivers to examine their confidence in and preferences for reporting rehabilitation service use to inform measure development. The interview guide was refined through pilot interviews (n=2) excluded from analysis. Subsequent interviews were transcribed verbatim and analysed using thematic analysis with hybrid deductive-inductive coding.
settingHealth Insurance Portability and Accountability Act (HIPAA)-compliant videoconference platform.
participantsParticipants were recruited using maximum variation sampling to promote diversity across factors associated with rehabilitation service use. 14 caregivers met the following inclusion criteria and consented to participate: primary caregiver of a child aged 0-18 years who sustained a TBI requiring hospitalisation within the past 3 years; caregiver communicates in English. Sampling continued until data saturation was reached.
resultsThree themes pertaining to the study objectives were identified: (1) Caregivers are confident in their ability to accurately report their child's rehabilitation service use and satisfaction by setting with approximate dosage; (2) Caregivers' confidence in their ability to accurately report service use varies by setting and (3) Caregivers endorsed completing a comprehensive measure of rehabilitation service use with embedded definitions and structured prompts and preferred electronic administration for remote completion.
conclusionsFindings support the acceptability and potential feasibility of a caregiver-report measure of rehabilitation service use across the care continuum following their child's TBI. Next steps will include prototyping the Rehabilitation Use Measure and iteratively refining it through expert feedback and cognitive interviews with caregivers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.