Evidence map›Paper›PMID 42207327›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026

Exploring the use of a youth specific screening tool in hematological cancer care: perspectives from young adult patients and healthcare professionals.

Iben Husted Nielsen, Kristina Holmegaard Nørskov, Line Bentsen, Helle Pappot, Nina Toft

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Iben Husted NielsenDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. iben.husted.nielsen@regionh.dk.ORCID http://orcid.org/0000-0001-7618-3729
Kristina Holmegaard NørskovDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark. kristina.holmegaard.noerskov@regionh.dk.ORCID http://orcid.org/0000-0002-1055-9161
Line BentsenDepartment of Oncology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID http://orcid.org/0000-0003-2459-6462
Helle PappotDepartment of Oncology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID http://orcid.org/0000-0002-3570-5372
Nina ToftDepartment of Hematology, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.ORCID http://orcid.org/0009-0005-3747-8555

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdolescents and young adults (AYAs) with cancer experience substantial psychological distress and unmet supportive care needs. Routine screening with age-specific tools may improve the identification and addressing of concerns. The Adolescent and Young Adult Psycho-Oncology Screening Tool (AYA-POST) is a validated instrument, yet little is known about how AYAs and healthcare professionals (HCPs) experience its use in clinical practice.

objectiveTo explore how the AYA-POST supports AYAs in identifying, prioritizing, and communicating the health concerns most important to them and to examine HCP perspectives on patient engagement, communication, and decision-making.

methodsWe conducted a qualitative study combining semi-structured individual interviews with AYAs (18-39 years) in a treatment trajectory for acute leukemia or malignant lymphoma and focus group interviews with physicians and nurses. Patients completed the AYA-POST prior to two consultations; interviews followed the second visit. Data were analyzed using reflexive thematic analysis.

resultsPatients experienced that the AYA-POST facilitated self-reflection, preparation, and prioritization of concerns, enhancing communication with HCPs. The tool uncovered often-overlooked physical, psychological, and sensitive issues, including sexual health and emotional well-being, and promoted patient empowerment. HCPs reported that it expanded consultations beyond biomedical symptoms and encouraged patient-centered dialogue. Challenges included time constraints, variability in patient readiness, staff training needs, and practical issues with paper-based forms. Both groups highlighted the importance of flexible timing, multidisciplinary collaboration, and integration into routine workflows.

conclusionsThe AYA-POST can strengthen patient-centered communication and empowerment in hematological AYA care. Successful implementation requires integration into clinical workflows, staff training, flexible timing, and systematic follow-up.

Indexed as

Hematologic NeoplasmsLeukemiaLymphomaAdolescentAdultAttitude of Health PersonnelCommunicationDecision MakingFemaleFocus GroupsHealth PersonnelHumansInterviews as TopicMalePatient ParticipationQualitative ResearchCancerCommunication toolPatient engagementYoung adults

Identifiers

PMID42207327
PMCPMC13219061

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.