Evidence map›Paper›PMID 42206149›Full record

ArticleInternational journal of population data science2026

A Landscape Overview of Integrated Data Systems Funding and Staffing Models Across the U.S.

Amy Hawn Nelson, Sharon Zanti, Rebecca S Pepe, Isabel Algrant, Renette Lee, Della Jenkins

Abstract read
In one paragraph

Article in International journal of population data science, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Amy Hawn NelsonActionable Intelligence for Social Policy (AISP), University of Pennsylvania, School of Social Policy and Practice, 3701 Locust Walk, Philadelphia, PA, 19104, United States.
Sharon ZantiIowa State University of Science and Technology, Ames, IA, 50011, United States.
Rebecca S PepeUniversity of Pennsylvania, School of Social Policy and Practice, 3701 Locust Walk, Philadelphia, PA, 19104, United States.
Isabel AlgrantActionable Intelligence for Social Policy (AISP), University of Pennsylvania, School of Social Policy and Practice, 3701 Locust Walk, Philadelphia, PA, 19104, United States.
Renette LeeUniversity of Pennsylvania, School of Social Policy and Practice, 3701 Locust Walk, Philadelphia, PA, 19104, United States.
Della JenkinsActionable Intelligence for Social Policy (AISP), University of Pennsylvania, School of Social Policy and Practice, 3701 Locust Walk, Philadelphia, PA, 19104, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Funding and staffing structures for data sharing and integration vary widely across the U.S., with few recommendations for optimal resource allocation. Objectives: We sought to deepen our understanding of how Integrated Data Systems (IDS) are funded and staffed over time. This work examines how IDS have developed to provide practical guidance for practitioners, policymakers, and academic audiences interested in establishing and expanding integrated data efforts. Methods: Since 2008, Actionable Intelligence for Social Policy (AISP) has supported jurisdictions through the process of developing integrated data systems, offering guidance, technical assistance, and training opportunities. We regularly interact with and convene a network of 40+ sites across the U.S. and conduct a biennial network survey. This paper provides insights from survey results (2023, 2025) and qualitative interviews conducted with 24 sites (2024). Results: Interviews revealed three broad categories of IDS. Small efforts, with budgets between $250,000 - $500,000, tend to serve smaller populations, focus on a specific domain, with 2-3 full-time staff members. Medium efforts, which have budgets between $500,000 - $1,000,000, tend to be county or state level, often based at universities, with 3-6 full-time staff. Large efforts, which have budgets over a million dollars, tend to be county or state level, operate within government, and have up to 20-40 full-time staff members. Funding comes from a range of sources-federal, local, state, philanthropic, and fee-for-service. Across all categories, sites spend the majority of their budgets on staffing and little, comparatively, on technology and infrastructure. Conclusion: Key themes persist across the unique landscape of IDS efforts. Regardless of budget and funding mechanisms, sites spend more money on personnel than any other expense. Successful efforts tend to focus initial investments on partnership development and data governance, rather than technical infrastructure, and diversify funding sources over time.

Indexed as

Personnel Staffing and SchedulingBudgetsHumansUnited Statescapacity buildingintegrated administrative data systemssustainable funding

Identifiers

PMID42206149
PMCPMC13202192

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.