ArticleJournal of clinical and translational science2026
Exploring the perioperative experiences of youth undergoing cardiac surgery: A qualitative needs assessment for tailoring a mobile self-management app.
Article in Journal of clinical and translational science, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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15 authors.
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Abstract
Introduction: One in five children who undergo cardiac surgery report experiencing moderate to severe pain lasting more than 3 months after surgery which has a significant impact on quality of life. iCanCope with PostOperative Pain ("iCanCope POP") is a smartphone app that provides adolescents with evidence-based strategies to manage postoperative pain. The goal of this study was to explore the unique needs and pain-management experiences of youth undergoing cardiac surgery to inform the development of a tailored iteration of iCanCope POP. Methods: A descriptive qualitative design using semi-structured interviews and focus groups was conducted with adolescents ages 12-18 who had received cardiac surgery, caregivers of youth undergoing cardiac surgery, and interdisciplinary healthcare providers (HCPs). Qualitative data were inductively and deductively coded using a content analysis approach to outline participants' pain management experiences and perspectives on the iCanCope POP app. Results: 14 interviews and 1 focus group were completed with 6 children, 6 parents, and 12 HCPs ( Discussion/conclusion: Participants reported significant challenges during the perioperative pediatric cardiac surgery journey and identified potential opportunities for a tailored mobile self-management app to improve their surgical experience. Future research should use these perspectives to inform a new iteration of the iCanCope POP app for youth undergoing cardiac surgery.
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