Evidence map›Paper›PMID 42205872›Full record

ReviewEpilepsy currents2026

Towards a Unified Research Agenda: International Consensus to Advance Understanding and Prevention of Sudden Unexpected Death in Epilepsy.

Hannah Pickard, Elaine K O'Loughlin, Mary Holmay, Gardiner Lapham, Jeffrey Buchhalter, Ben Donovan, Amol Bhandare, Rob C Wykes, Arjune Sen, Laura S Lubbers

Abstract readReview
In one paragraph

Review in Epilepsy currents, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Hannah PickardEpilepsy Research Institute, London, UK.ORCID https://orcid.org/0009-0005-4573-7609
Elaine K O'LoughlinCURE Epilepsy, Chicago, IL, USA.ORCID https://orcid.org/0000-0002-4270-9902
Mary HolmayCURE Epilepsy, Chicago, IL, USA.ORCID https://orcid.org/0009-0005-0835-8810
Gardiner LaphamPartners Against Mortality in Epilepsy, (PAME), Chicago, IL, USA.
Jeffrey BuchhalterPartners Against Mortality in Epilepsy, (PAME), Chicago, IL, USA.
Ben DonovanSUDEP Action, Wantage, Oxfordshire, UK.
Amol BhandareSchool of Life Sciences, University of Warwick, Warwick, UK.ORCID https://orcid.org/0000-0002-5214-9355
Rob C WykesUniversity College London Queen Square Institute of Neurology, London, UK.ORCID https://orcid.org/0000-0002-6141-6822
Arjune SenOxford Epilepsy Research Group, Nuffield Department of Clinical Neurosciences, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0002-8948-4763
Laura S LubbersCURE Epilepsy, Chicago, IL, USA.ORCID https://orcid.org/0000-0002-1645-9356

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Sudden unexpected death in epilepsy (SUDEP) is a significant research and community priority. In recent years, diverse stakeholders, including researchers, clinicians, charity organizations, people affected by epilepsy, and bereaved families, have collectively identified priorities and recommendations to accelerate understanding of SUDEP risk and prevention. Through comprehensive discussions, shared learnings and priorities have emerged across three broad areas, including clinical research, preclinical science, and awareness and education. To address these priorities, actionable recommendations that focus on providing better infrastructure, tools, data, access and education to advance prevention of SUDEP have been defined.

Indexed as

clinicaleducationepilepsypreclinicalSUDEP

Identifiers

PMID42205872
PMCPMC13201376

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.