Evidence map›Paper›PMID 42191771›Full record

ArticleScientific reports2026

Young adults with PIMD Polyhandicap in pediatric settings a situation more complex than problematic.

Marie-Christine Rousseau, Sibylle Del-Duca, Any Beltran, Houria El Ouazzani, Ilyes Hamouda, Thierry Billette de Villemeur, Pascal Auquier, Eval-PLH Group, Karine Baumstarck

Registry-linked trialAbstract read
In one paragraph

Article in Scientific reports, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02400528 (Prospective Cohort Follow-up of French Patients With Profound and Multiple Disabilities), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02400528 naunknown statusnot on this map

Prospective Cohort Follow-up of French Patients With Profound and Multiple Disabilities: Healthcare Pathways and Quality of Life Among Patients and Their Families

TypeinterventionalSponsorAssistance Publique Hopitaux De MarseilleRan2015 to 2019Enrolled1,200ConditionsParaparesis, Tetraparesis, Hemiparesis, AtaxiaArmsquality of life questionnaires
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Marie-Christine RousseauEA 3279, CEReSS - Research Centre On Health Services and Quality of Life, Aix Marseille University, 27 Boulevard Jean-Moulin, 13385, Marseille, France. marie-christine.rousseau@aphp.fr.ORCID http://orcid.org/0000-0002-8065-8667
Sibylle Del-DucaDepartment of Epidemiology and Health Economics, Assistance Publique Des Hôpitaux de Marseille, Marseille, France.
Any BeltranDepartment of Epidemiology and Health Economics, Assistance Publique Des Hôpitaux de Marseille, Marseille, France.
Houria El OuazzaniDepartment of Epidemiology and Health Economics, Assistance Publique Des Hôpitaux de Marseille, Marseille, France.
Ilyes HamoudaDepartment of Epidemiology and Health Economics, Assistance Publique Des Hôpitaux de Marseille, Marseille, France.
Thierry Billette de VillemeurSorbonne Université, APHP, Paris, France.
Pascal AuquierEA 3279, CEReSS - Research Centre On Health Services and Quality of Life, Aix Marseille University, 27 Boulevard Jean-Moulin, 13385, Marseille, France.
Eval-PLH Group
Karine BaumstarckEA 3279, CEReSS - Research Centre On Health Services and Quality of Life, Aix Marseille University, 27 Boulevard Jean-Moulin, 13385, Marseille, France.

Funding

Direction Générale de l'offre de Soins preps 2013
6 · The paper itself

Abstract

Profound Intellectual Multiple Disability (PIMD)/Polyhandicap, thanks to advances in medical management, are now reaching adulthood and have increased survival. Although, ten percent of the adults are cared for in paediatric facilities. The aims of this study were to assess 1) whether the profile of young adults in paediatric care differ from those in adult care on health characteristics, care organizations, and healthcare consumption. The study uses a cross-sectional design from the French Eval-PLH cohort: Two groups of young adults (18-35 years) with PIMD/Polyhandicap were defined according to the structure where they were care managed: paediatric vs adult facilities. Data collected: general health characteristics, care organization, and healthcare consumption. Young adults care managed for in paeditric facilities were significantly younger, had a lower body mass index, presented a less severe dependency status, presented a less severe health status, and were less often examined by a pneumologist, or a gynaecologist practitioner compared to adults care managed in adult facilities. The transition process from paediatric to adult care for persons with PIMD/Polyhandicap often occurs later, without any evident effect on the health outcomes and care provision.Clinical trial registration number NCT02400528 (February 2015).

Indexed as

Intellectual DisabilityAdolescentAdultCross-Sectional StudiesFemaleFranceHumansMaleYoung AdultCare needsCare structuresPolyhandicapProfound intellectual multiple disabilitiesTransition

Identifiers

PMID42191771
PMCPMC13434123

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.