Evidence map›Paper›PMID 42188203›Full record

ArticleEuropean journal of investigation in health, psychology and education2026

Between Ideal and Actual Care: Patients' and Family Carers' Experiences of Cancer Care Relationships.

Claudia Venuleo, Serena Miccoli, Alessia Petrachi, Tiziana Marinaci

Abstract read
In one paragraph

Article in European journal of investigation in health, psychology and education, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Claudia VenuleoDepartment of Human and Social Sciences, University of Salento, 73100 Lecce, Italy.ORCID 0000-0003-2500-1766
Serena MiccoliDepartment of Human and Social Sciences, University of Salento, 73100 Lecce, Italy.
Alessia PetrachiDepartment of Human and Social Sciences, University of Salento, 73100 Lecce, Italy.ORCID 0009-0008-7529-8389
Tiziana MarinaciDepartment of Human and Social Sciences, University of Salento, 73100 Lecce, Italy.ORCID 0000-0002-1906-2880

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Research on how patients and family carers experience their relationships with physicians and healthcare staff is limited, particularly regarding the gap between ideal expectations and actual care. This study explored patients' and carers' perceptions of the ideal care relationship, their lived experiences, and factors shaping discrepancies between expectations and reality. A total of 143 individual, face-to-face semi-structured interviews (mean age = 56.7 ± 13.2; 61.4% women) were conducted with 57 cancer patients and 86 family carers in outpatient oncology clinics in Southern Italy. Participants were recruited through purposive sampling and interviewed separately, with carers recruited as an independent group. Transcripts were analysed using Thematic Analysis of Elementary Contexts (TAEC), a mixed-methods approach combining qualitative and quantitative techniques. Methodological rigor and trustworthiness were ensured in line with COREQ reporting guidelines. Four thematic clusters emerged: "Variability in the experience," "The ideal care relationship," "Waiting times and delays in care," and "The luck of being cared for by a good physician." Oncology care experiences emerge as inherently ambivalent: supportive in interactions with clinicians, yet tension-laden due to systemic and organizational constraints. These findings suggest that strengthening patient- and family-centered care requires both relational improvements and organizational interventions aimed at reducing waiting times, enhancing care integration across fragmented pathways, and improving continuity of care.

Indexed as

cancer patientsfamily carersideal care relationshipperceived care experiencephysician-patient relationshipsemi-structured interviewsthematic analysis

Identifiers

PMID42188203
PMCPMC13205213

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.