Evidence map›Paper›PMID 42185022›Full record

ArticleBMJ paediatrics open2026

Refining implementation determinants and strategies to scale an electronic assessment option for coordinating family-centred care in early intervention.

Dianna L Bosak, Lauren Frame, Julie Bobitt, Chelsea Guillen, Mary A Khetani

Registry-linked trialAbstract read
In one paragraph

Article in BMJ paediatrics open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04562038 (Implementation of Electronic Shared Decision-Making Support for Families to Design and Monitor Participation-Focused Early Intervention), which is not on this map. Not yet cited in PubMed.

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0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04562038 nacompletednot on this map

Implementation of Electronic Shared Decision-Making Support for Families to Design and Monitor Participation-Focused Early Intervention

TypeinterventionalSponsorUniversity of Illinois at ChicagoRan2020 to 2022Enrolled76ConditionsChild Development Disorder, Development DelayArmsYoung Children's Participation and Environment Measure (YC-PEM) electronic patient-reported outcome (e-PRO)
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Dianna L BosakUniversity of Illinois Chicago, Chicago, Illinois, USA.ORCID http://orcid.org/0000-0001-7486-2912
Lauren FrameUniversity of Illinois Chicago, Chicago, Illinois, USA.
Julie BobittUniversity of Illinois Chicago, Chicago, Illinois, USA.
Chelsea GuillenUniversity of Illinois at Urbana-Champaign, Urbana, Illinois, USA.
Mary A KhetaniUniversity of Illinois Chicago, Chicago, Illinois, USA mkhetani@uic.edu.ORCID http://orcid.org/0000-0003-2628-3371

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundYoung Children's Participation and Environment Measure (YC-PEM) is a promising electronic patient-reported outcome (e-PRO) that could support family-centred care during service plan development in early intervention (EI), but prior implementation research has been limited to a single programme and state despite state level variability in EI administration. This study aims to identify shared and localised determinants and strategies for scaling YC-PEM e-PRO implementation in EI systems across multiple programmes and states.

methodsThis study used an explanatory-sequential mixed-methods case study design to engage EI stakeholders (leaders (n=4), providers (n=19) and caregivers (n=13)) across two of three geographical bands in the case state. Data were collected via virtual semi-structured interviews and focus groups, with stakeholders first rating and then explaining their responses to how helpful and easy it would be to implement the YC-PEM e-PRO option within their routine EI workflow. Transcripts were content analysed using a hybrid deductive and inductive approach to yield one analytical memo per EI stakeholder group that underwent team review and participant validation, followed by mapping of memo content to an established implementation research logic model that had been populated with content specific to another state.

resultsAll 37 EI stakeholders rated the YC-PEM e-PRO option as helpful, while most stakeholders rated it as somewhat or not easy to implement within their EI workflow. They confirmed the continued relevance of nine known determinants (four supports, five barriers) and introduced four new determinants (two supports, two barriers) for localised implementation in their state. Stakeholders confirmed and further refined the scope of two strategies and introduced one new potential strategy to support its localised implementation within their state.

conclusionsBoth shared and localised determinants and corresponding strategies are relevant to advance YC-PEM e-PRO implementation across state and local EI programmes with varied data system capabilities, organisational readiness and provider resources. TRIAL REGISTRATION NUMBER: NCT04562038.

Indexed as

Early Intervention, EducationalPatient-Centered CarePatient Reported Outcome MeasuresChild, PreschoolFemaleFocus GroupsHumansInfantQualitative ResearchCaregiversChild HealthInfantOccupational therapyQualitative research

Identifiers

PMID42185022
PMCPMC13202104

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.