Evidence map›Paper›PMID 42183588›Full record

ArticlePalliative medicine2026

Enablers to successful patient and public involvement in Palliative Care Research: Qualitative perspectives of public members and Program Coordinators.

Mollie Wilson, Jennifer Philip, Christine Hofmeyer, Avi Paluch, Stacey Panozzo, Peter Hudson, Anna Collins

Abstract read
In one paragraph

Article in Palliative medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Mollie WilsonDepartment of Medicine, University of Melbourne, Australia.ORCID 0009-0007-2545-3435
Jennifer PhilipDepartment of Medicine, University of Melbourne, Australia.ORCID 0000-0002-3312-0645
Christine HofmeyerVoices for Palliative Care, Australia.
Avi PaluchVoices for Palliative Care, Australia.
Stacey PanozzoDepartment of Medicine, University of Melbourne, Australia.ORCID 0000-0001-8918-3226
Peter HudsonDepartment of Medicine, University of Melbourne, Australia.ORCID 0000-0001-5891-8197
Anna CollinsDepartment of Medicine, University of Melbourne, Australia.ORCID 0000-0003-2139-0100

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDespite policy and health service imperatives for public involvement to be embedded within palliative care research, this practice is not commonplace. Few empirical studies have sought to explore and evaluate models of public involvement for palliative care.

aimTo explore experiences of public involvement within palliative care, and to identify enablers for successful models of involvement.

designAn exploratory qualitative design was utilized. Semi-structured interviews were conducted via zoom or telephone, and interview transcripts were subjected to inductive thematic analysis. SETTING/

participantsPurposive sampling of 23 participants with experience of public involvement in palliative care or related areas, across different health institutions in Australia and the United Kingdom, including public members and public involvement program coordinators.

resultsTwelve public members and 11 program coordinators described their experience with public involvement in a palliative or related healthcare setting. Three themes emerged relating to successful involvement (1)

conclusionsThis study reveals enablers that potentially shape the extent and effectiveness of public involvement in palliative care. Integrating these enablers has implications for future models of public involvement in palliative care and potential for enhanced research outcomes.

Indexed as

Community ParticipationHealth Services ResearchPalliative CarePatient ParticipationAdultAgedAustraliaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchUnited Kingdomconsumer involvementpalliative carepublic involvementqualitative research

Identifiers

PMID42183588
PMCPMC13478410

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.