Evidence map›Paper›PMID 42179872›Full record

ArticleInternational journal of integrated care

Development and Validation of a People-Centred Scale for Evaluating Care Pathway Experiences.

Vittoria Sturlese, Gerardo Petruzziello, Stefano Benini, Lucetta Nisticò, Davide Allegri, Anna Pavani, Carlo Descovich, Sergio Cinocca, Federica Lugaresi, Elisa Mazzini and 3 more

Abstract read
In one paragraph

Article in International journal of integrated care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Vittoria SturleseClinical and Quality Management Unit, Governo Clinico, Ricerca, Formazione e Sistemi Qualità, Azienda USL di Bologna, Bologna, Italy.
Gerardo PetruzzielloDepartment of Psychology "Renzo Canestrari", Alma Mater Studiorum, University of Bologna, Bologna, Italy.ORCID https://orcid.org/0000-0001-7191-1643
Stefano BeniniClinical and Quality Management Unit, Governo Clinico, Ricerca, Formazione e Sistemi Qualità, Azienda USL di Bologna, Bologna, Italy.ORCID https://orcid.org/0000-0001-6299-888X
Lucetta NisticòGoverno Clinico e Qualità, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy.
Davide AllegriClinical and Quality Management Unit, Governo Clinico, Ricerca, Formazione e Sistemi Qualità, Azienda USL di Bologna, Bologna, Italy.ORCID https://orcid.org/0009-0005-4368-3803
Anna PavaniGoverno Clinico e Qualità, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy.
Carlo DescovichClinical and Quality Management Unit, Governo Clinico, Ricerca, Formazione e Sistemi Qualità, Azienda USL di Bologna, Bologna, Italy.ORCID https://orcid.org/0009-0008-0748-6396
Sergio CinoccaDipartimento di Cure Primarie, Azienda USL di Bologna, Bologna, Italy.ORCID https://orcid.org/0009-0001-1577-0505
Federica LugaresiClinical and Quality Management Unit, Governo Clinico, Ricerca, Formazione e Sistemi Qualità, Azienda USL di Bologna, Bologna, Italy.
Elisa MazziniResearch and Statistics Infrastructure, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.ORCID https://orcid.org/0000-0003-2744-8166
Luca GhirottoQualitative Research Unit, Scientific Directorate, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.ORCID https://orcid.org/0000-0001-7632-1271
Domenica GazineoGoverno Clinico e Qualità, IRCCS Azienda Ospedaliero-Universitaria di Bologna, Bologna, Italy.ORCID https://orcid.org/0000-0003-1866-3358
Loredana CerulloQuality and Accreditation Office, Medical Directorate, Azienda USL-IRCCS di Reggio Emilia, Reggio Emilia, Italy.ORCID https://orcid.org/0000-0002-8538-3885

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Care pathways (CPs) are essential for ensuring coordinated, high-quality healthcare, yet patient-reported experiences remain underexplored. In Italy, no validated tool exists to systematically assess persons' perspectives on CPs. This study aimed to develop and validate a scale to measure patient-reported experiences with CPs. Methods: A mixed-method approach was used. First, a literature review, a Delphi study involving healthcare professionals, and focus groups with persons and interest-holders informed the generation of items. Next, a pilot test with 218 persons diagnosed with breast cancer refined the scale. Finally, a quantitative study involving 12 CPs across three healthcare organisations assessed the scale's properties using exploratory and confirmatory factor analyses. Results: Factor analysis revealed a four-factor structure encompassing person-centrality, responsiveness, integration, and organisation. The scale demonstrated good internal validity, with satisfactory reliability for most factors. Correlations with overall CP evaluation, satisfaction, and self-reported health provided support for external validity. However, the organisational factor showed lower reliability, requiring further refinement. Discussion: This study provides a robust, multidimensional tool for assessing patients' reported experiences with CPs. Its findings highlight the importance of person-centred care and integrated service delivery. Conclusion: The newly developed scale offers a validated measure to enhance CP evaluation, supporting people-centred healthcare practice and policy improvements.

Indexed as

healthcare quality assessmentintegrated caremixed-methods validationoncology pathwayspatient-centred evaluation

Identifiers

PMID42179872
PMCPMC13196679

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.