Evidence map›Paper›PMID 42172643›Full record

ArticleJournal of medical Internet research2026

The Use of Speculative Fiction in Future-Focused Health Care Research.

Sjors Groeneveld, Jobke Wentzel, Melissa Laurens, Lisette van Gemert-Pijnen, Rudolf M Verdaasdonk, Harmieke van Os-Medendorp, Marjolein den Ouden

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Sjors GroeneveldResearch Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, Postbox 70.000, Enschede, Overijssel, 7500 KB, The Netherlands, 31 880198888.ORCID http://orcid.org/0000-0003-3942-9691
Jobke WentzelResearch Group ICT Innovation in Care, Windesheim University of Applied Sciences, Zwolle, The Netherlands.ORCID http://orcid.org/0000-0003-3897-4436
Melissa LaurensResearch Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, Postbox 70.000, Enschede, Overijssel, 7500 KB, The Netherlands, 31 880198888.ORCID http://orcid.org/0000-0002-6904-4445
Lisette van Gemert-PijnenCentre for eHealth and Wellbeing Research, Section of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands.ORCID http://orcid.org/0000-0001-6511-7240
Rudolf M VerdaasdonkTechMed Center, Health Technology Implementation, University of Twente, Enschede, The Netherlands.ORCID http://orcid.org/0000-0002-3115-637X
Harmieke van Os-MedendorpFaculty Health, Sports, and Social Work, Inholland University of Applied Sciences, Amsterdam, The Netherlands.ORCID http://orcid.org/0000-0003-3300-2101
Marjolein den OudenResearch Group Technology, Health & Care, School of Social Work, Saxion University of Applied Sciences, Postbox 70.000, Enschede, Overijssel, 7500 KB, The Netherlands, 31 880198888.ORCID http://orcid.org/0000-0001-7821-1578

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Unlabelled: Health care is undergoing rapid change due to digitalization, artificial intelligence, data-driven decision-making, and shifting patient needs. These developments raise complex ethical, social, and organizational questions that cannot always be addressed by conventional research methods alone. There is a growing need for tools that help stakeholders imagine alternative futures to surface underlying values. Futures studies and speculative fiction respond to this need by presenting "what if" scenarios that make uncertain futures concrete and discussable, enabling dialogue among diverse stakeholders such as health care professionals, researchers, policy makers, and decision makers. This paper examines how speculative fiction can be used as a structured yet imaginative tool in health care research. It positions speculative fiction as a tool within futures studies and participatory research approaches, outlining its conceptual grounding and clarifying its role that stimulates interpretation and reflection within methods such as focus groups, workshops, and surveys. In this way, speculative fiction complements established approaches such as human-centered design, contextual inquiry, and value specification by addressing what does not yet exist and making abstract future issues tangible. The paper presents a case study, The Digital Data Divide, in which speculative fiction was used to explore the use of personal data in health care. Two contrasting short films were developed to stimulate dialogue and invite participants to reflect on associated values. Insights from this case are structured into a 6-step practical reporting guide: determining whether speculative fiction fits the research aim, choosing an appropriate form of speculative fiction, creating or selecting speculative scenarios, engaging participants, analyzing responses, and sharing and disseminating results. Across these steps, the paper discusses methodological and ethical considerations, including alignment between scenarios and study aims, balancing utopian and dystopian elements, questions of plausibility and interpretability, and the need for researcher reflexivity. Overall, this paper contributes to the growing discussion on future-oriented tools in health care research by showing how speculative fiction can help address complex and uncertain challenges in ways that are accessible to a wide range of stakeholders and that support dialogue across perspectives, provided that its use is ethically transparent, methodologically explicit, and carefully reported. The paper concludes with a call to other researchers to also experiment with speculative fiction and to share their experiences with the health care research community to learn and advance its use.

Indexed as

Health Services ResearchHumansdigital healthFutures Studieshealth care researchhealth technologynarrativesresearch toolsspeculative fiction

Identifiers

PMID42172643
PMCPMC13197159

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.