ArticleMethodsX2026
Epi-STEP: A multidisciplinary transition model for patients with epilepsy.
Article in MethodsX, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06778772 (Transition to Adult Care in Epilepsy), which is not on this map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Transition to Adult Care in Epilepsy
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Authors and funding
15 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
By involving a multidisciplinary team, the model creates a holistic care pathway that supports the medical, psychological, and social needs of adolescents and their caregivers during the transition process. Epilepsy is a prevalent neurological disorder in childhood, and many childhood-onset epilepsy cases persist into adulthood, necessitating a transition from pediatric to adult care. This transition requires a structured process to address medical and psychosocial l needs; however, many epilepsy centers lack formal programs to support this transition, and there is a need for a standardized approach to ensure that patients and their families are adequately prepared. Therefore, we developed the Epi-STEP protocol, a multidisciplinary transition model for young adults with epilepsy and their caregivers. This monocentric observational study will assess the potential usefulness of the transition process for patients with epilepsy aged 16 and older, recruited from the Child Neuropsychiatry Unit at the IRCCS Mondino Foundation. Data will be collected at three time points: at the last visit at the Child Neuropsychiatry Unit (T0), at the first visit at the Adult Epileptology Service (T1), and at a 12-month follow-up (T2). Assessment tools will include both standardized instruments and ad-hoc questionnaires specifically developed to comprehensively evaluate the transition process and will be completed by patients, caregivers, and healthcare professionals. This study will evaluate the utilityof the transition process, assessing readiness for adult care and psychosocial well-being of the patients involved. Findings will guide targeted interventions to improve clinical outcomes, enhance transition readiness, and provide better support for patients and families during this critical phase. Finally, this model designed for epilepsy could be further adapted to other chronic conditions requiring structured transition regimens. Trial registration: The study has been registered at ClinicalTrials.gov (registration number NCT06778772) on the 16th January 2025.
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