Evidence map›Paper›PMID 42160903›Full record

ArticleSchizophrenia research2026

A mixed methods study of program-level factors influencing patient and family engagement in first episode psychosis coordinated specialty care.

Cheryl Y S Foo, Catherine J Leonard, Merranda M McLaughlin, Kelsey A Johnson, Dost Öngür, Kim T Mueser, Corinne Cather

Abstract read
In one paragraph

Article in Schizophrenia research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

7 authors.

Cheryl Y S FooCenter of Excellence for Psychosocial and Systemic Research, Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States of America; Department of Psychiatry, Harvard Medical School, Boston, MA, United States of America; Laboratory for Early Psychosis (LEAP) Center, McLean Hospital, Belmont, MA, United States of America. Electronic address: cfoo1@mgh.harvard.edu.
Catherine J LeonardCenter of Excellence for Psychosocial and Systemic Research, Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States of America.
Merranda M McLaughlinCenter of Excellence for Psychosocial and Systemic Research, Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States of America; Department of Psychiatry, Harvard Medical School, Boston, MA, United States of America.
Kelsey A JohnsonLaboratory for Early Psychosis (LEAP) Center, McLean Hospital, Belmont, MA, United States of America; Massachusetts Psychosis Network for Early Treatment (MAPNET), Beth Israel Deaconess Medical Center, Boston, MA, United States of America.
Dost ÖngürDepartment of Psychiatry, Harvard Medical School, Boston, MA, United States of America; Laboratory for Early Psychosis (LEAP) Center, McLean Hospital, Belmont, MA, United States of America; Schizophrenia and Bipolar Disorder Research Program, McLean Hospital, Belmont, MA, United States of America.
Kim T MueserCenter of Excellence for Psychosocial and Systemic Research, Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States of America; Center for Psychiatric Rehabilitation, Departments of Occupational Therapy and Psychological & Brain Sciences, Boston University, Boston, MA, United States of America.
Corinne CatherCenter of Excellence for Psychosocial and Systemic Research, Department of Psychiatry, Massachusetts General Hospital, Boston, MA, United States of America; Department of Psychiatry, Harvard Medical School, Boston, MA, United States of America.

Funding

Randomized controlled trial of enhanced coordinated specialty care (CSC 2.0)P50MH115846 · NIMH · MCLEAN HOSPITAL · PI Dost Ongur · 2019 to 2026
$16.9M
NIMH NIH HHS P50 MH115846
6 · The paper itself

Abstract

backgroundPoor patient retention and family engagement compromise the effectiveness of coordinated specialty care (CSC) for first-episode psychosis (FEP). This mixed methods study aimed to identify program-level characteristics (CSC fidelity and engagement strategies) associated with patient retention and family engagement in Massachusetts' CSC programs.

methodsPrimary outcomes were rates of patient retention and family engagement (≥1 evidence-based family intervention session), based on CSC program census (October 2022-September 2023). Quantitative analyses explored program characteristics (EPINET Program-Level Core Assessment Battery) and fidelity ratings (Massachusetts Psychosis Fidelity Scale) as predictors using t-tests or univariate linear regressions. Thematic analysis of program interviews compared patient and family engagement strategies employed by high versus low performing programs.

resultsAcross nine programs, mean patient retention was 86% (range: 58-97%) and family engagement was 40% (range: 12-100%). Higher fidelity to evidence-based services (e.g., individual therapy, family intervention, and supported education/employment) was significantly associated with both outcomes (p < .05; R

conclusionsHigher fidelity CSC programs had better patient retention and family engagement. Case management-related supports addressed treatment barriers. Strategies designed to strengthen therapeutic alliance and goal alignment may promote patient engagement, while family engagement may benefit from proactive recommendation of family intervention.

Indexed as

FamilyFamily TherapyMental Health ServicesOutcome and Process Assessment, Health CarePatient ParticipationPsychotic DisordersAdolescentAdultFemaleHumansMaleMassachusettsYoung AdultCoordinated specialty careEarly interventionFamily engagementFidelityFirst-episode psychosisRetentionTreatment engagement

Identifiers

PMID42160903
PMCPMC13283334

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.