ArticleJournal of perinatology : official journal of the California Perinatal Association2026
Sustained improvement in caregiver-reported infant demographic collection: a pilot towards equitable outcomes in the neonatal intensive care unit.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Authors and funding
5 authors.
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Abstract
backgroundInfant mortality disparities, with prematurity among the leading causes of death, make it critical for neonatal intensive care units (NICUs) to assess internal demographic and outcomes data. Assessment of a delivery hospital NICU within a large children's hospital system revealed "Unavailable" infant race among the top demographic categories.
objectiveTo decrease the rate of "Unavailable" infant race in the electronic health record by 10% in a level III NICU by December 2023 and sustain for 1-year. DESIGN/
methodsWe developed a multidisciplinary team, completed Gemba walks, conducted Plan-do-study-act (PDSA) cycles, and analyzed outcomes in process control charts.
results"Unavailable" infant race decreased from 97% to 49% and was sustained. Modifying hospital registration processes, updating caregiver questionnaires, engaging and educating staff contributed to success and sustainment.
conclusionsWe reduced "Unavailable" data by 48% with 6-months sustainment prior to project expansion. Emulating this process can improve demographic data accuracy nationally.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.