ArticleBreast (Edinburgh, Scotland)2026
Towards patient-centered research in pregnancy-associated breast cancer: creating a science agenda through a priority-setting-partnership.
Article in Breast (Edinburgh, Scotland), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPregnancy-associated breast cancer (PABC) is a rare yet increasingly prevalent condition, characterized by diagnostic delay, distinct tumor biology, and complex clinical and psychosocial challenges that are insufficiently addressed within contemporary breast cancer research agendas. We aimed to develop a patient-centered research agenda for PABC through a Priority Setting Partnership (PSP), bringing together patients, clinicians, and researchers to identify and prioritize key unanswered research questions.
methodsA PSP was established comprising patients with PABC, healthcare professionals, and researchers from the Netherlands. Four focus group sessions were conducted and facilitated by an independent moderator using Socratic dialogue techniques to elicit lived experiences. Research questions were subsequently submitted and discussed, followed by prioritization through a structured weighted voting process involving both focus group participants and a broader sounding board.
resultsThe focus group included seven patients, four healthcare professionals, and three researchers. The sounding board consisted of 12 patients and four clinicians. Fourteen research questions were identified and prioritized using a weighted voting system. Although some priorities differed between patient participants and healthcare/research professionals, this process resulted in a consensus-based top 10 PABC research agenda, alongside five key signals aimed at improving clinical care.
conclusionsThis PSP identified critical evidence gaps across biological, clinical, and psychosocial domains in PABC. The resulting research agenda underscores the need for multidisciplinary and patient-informed research approaches to advance knowledge and improve care for women affected by PABC and their families.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.