ArticleFrontiers in aging2026
eDEM-CONNECT: agitation ontology for the intelligent support of informal caregivers of people with dementia.
Article in Frontiers in aging, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
People with dementia (PwD) face cognitive decline, placing added stress on family caregivers. Challenging behaviour, such as agitation, is one of the prominent behaviours exhibited by PwD, and family caregivers are often faced with the challenge of finding an appropriate intervention strategy to cope with it. To address this problem, current research focuses on developing digital solutions for the support of unprofessional caregivers, allowing them to ease the stress factor while dealing with agitation. A major challenge in any digital solution is the required domain knowledge. This knowledge includes information about the types of agitated behaviour, living and socio-economic conditions of the PwD and non-pharmaceutical interventions, which the caregiver can apply. We refer to this structured knowledge as an ontology. This study focuses on the development of the eDEM-Connect Ontology: Ontology of Dementia-related Agitation and Relationship between Informal Caregivers and Persons with Dementia (EDEM-CONNECTONTO) as the formalised domain knowledge for providing adequate support to caregivers. The knowledge is elicited through a systematic literature review, analysis of existing ontologies, workshops with experts, and interviews with informal caregivers. EDEM-CONNECTONTO consists of 252 Concepts, 16 relations, and 241 individuals. The ontology is implemented in the Web Ontology Language (OWL) and validated with the Protégé ontology development software. The results from the evaluation show that it meets the standard for biomedical ontologies. Furthermore, EDEM-CONNECTONTO is applied in several tasks related to the development of digital support systems for caregivers of PwD, demonstrating its practical applicability within the domain. The proposed ontology provides a structured semantic foundation for ontology-guided data annotation, knowledge graph construction, and GraphRAG-based caregiver-support applications. By formally modelling types of agitation, causes, consequences, PwD-caregiver relations, and non-pharmacological interventions, EDEM-CONNECTONTO enables explainable digital tools that support informal caregivers in identifying agitation patterns and selecting appropriate care strategies, thereby contributing to improved caregiver support and reduced caregiving stress.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.