Evidence map›Paper›PMID 42145039›Full record

ArticlePediatric blood & cancer2026

Supporting Survivor-Centered Care Through Digital Health Integration.

Jordan G Marchak, Rebecca Williamson-Lewis, Michael O'Connor, Michael Palgon, Yu-Ra Kim, Michael Schuckenbrock, Paula Edwards, Abraham Mendoza, Anthony Adams, Brian Arriaga-Solis and 6 more

Abstract read
In one paragraph

Article in Pediatric blood & cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Jordan G MarchakChildren's Healthcare of Atlanta, Atlanta, Georgia, USA.ORCID https://orcid.org/0000-0002-8747-7375
Rebecca Williamson-LewisChildren's Healthcare of Atlanta, Atlanta, Georgia, USA.
Michael O'ConnorBaylor College of Medicine, Houston, Texas, USA.ORCID https://orcid.org/0000-0002-1670-3339
Michael PalgonHimformatics, LLC, Atlanta, Georgia, USA.
Yu-Ra KimBaylor College of Medicine, Houston, Texas, USA.
Michael SchuckenbrockHimformatics, LLC, Atlanta, Georgia, USA.
Paula EdwardsEmory University, Atlanta, Georgia, USA.
Abraham MendozaBaylor College of Medicine, Houston, Texas, USA.
Anthony AdamsBaylor College of Medicine, Houston, Texas, USA.
Brian Arriaga-SolisBaylor College of Medicine, Houston, Texas, USA.
Justin ParkerBaylor College of Medicine, Houston, Texas, USA.
Harry Tinoco-GiraldoBaylor College of Medicine, Houston, Texas, USA.
Jason KingBaylor College of Medicine, Houston, Texas, USA.
C Michael FordisBaylor College of Medicine, Houston, Texas, USA.
Karen E EffingerChildren's Healthcare of Atlanta, Atlanta, Georgia, USA.ORCID https://orcid.org/0000-0002-9111-9191
Maria Monica GramatgesBaylor College of Medicine, Houston, Texas, USA.ORCID https://orcid.org/0000-0002-0947-104X

Funding

Survivorship and Access to care for Latinos to Understand and Address health outcome Differences (SALUD)UH3CA260607 · NCI · BAYLOR COLLEGE OF MEDICINE · PI Maria Monica Gramatges, LISA SCHUM KAHALLEY · 2023 to 2026
$6.3M
SurvivorLink: Scalability of an Electronic Personal Health Record for Cancer Survivors and Caregivers at Pediatric Cancer Centers.R01CA218389 · NCI · EMORY UNIVERSITY · PI ESCOFFERY, NGOC-CAM, MERTENS, ANN C · 2018 to 2022
$3.1M
AHRQ HHS R18HS017831NCI NIH HHS R01 CA218389NCI NIH HHS UH3CA26060NCI NIH HHS UH3 CA260607The Cancer Prevention Research Institute of Texas RP240143
6 · The paper itself

Abstract

Survivors of childhood cancer face barriers to receiving guideline-based, long-term follow-up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing. As part of a joint initiative to integrate the tools, 18 survivorship clinics using PFC and/or SurvivorLink were surveyed to assess awareness of features and preferred information dissemination strategies. Overall, awareness of core features of each tool was high, but knowledge of educational and clinician-focused resources was limited. Respondents prioritized distinct dissemination strategies for clinics, clinicians, survivors, and broader community engagement.

Indexed as

Cancer SurvivorsNeoplasmsPatient-Centered CareChildDigital HealthHumansSurvivorshipcancer survivorshipdigital health toolsmobile health applicationsurvivorship care plansurvivors of childhood cancer

Identifiers

PMID42145039
PMCPMC13344057

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.