Evidence map›Paper›PMID 42143376›Full record

ArticleBMC palliative care2026

Pediatric home-based hospice and palliative care: a scoping review.

Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert

Abstract readScoping Review
In one paragraph

Article in BMC palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ellen DavisCollege of Medicine, Northeast Ohio Medical University, OH, Rootstown, USA.
Daniel H GrossoehmeHaslinger Family PPC Center, Akron Children's Hospital, Akron, OH, USA. dgrossoehme@akronchildrens.org.
Toluwalase AjayiDivision of Palliative Medicine, University of California San Diego, La Jolla, CA, USA.
Justin N BakerDepartment of Pediatrics, Division of Quality of Life and PPC, Stanford University School of Medicine, Palo Alto, CA, USA.
Pamela S HindsSchool of Medicine and Health Sciences, Children's National Hospital and George Washington University, Washington, DC, USA.
Lisa HumphreyNationwide Children's Hospital, The Ohio State University College of Medicine, Columbus, OH, USA.
Jill Ann JarrellDepartment of Pediatrics, Division of Palliative Care, Baylor College of Medicine, Houston, TX, USA.
Rachel ThienprayoonDepartment of Pediatrics, James M. Anderson Center for Health Systems Excellence, University of Cincinnati College of Medicine, Cincinnati Children's Hospital, Cincinnati, OH, USA.
Sarah FriebertHaslinger Family PPC Center, Akron Children's Hospital, Akron, OH, USA.

Funding

Integrating clinician, caregiver and patient prioritized quality domains for home-based pediatric hospice and palliative careR01NR020608 · NINR · CHILDREN'S HOSPITAL MED CTR OF AKRON · PI GROSSOEHME, DANIEL HUCK · 2023 to 2025
$1.3M
NINR NIH HHS R01 NR020608NINR NIH HHS R01NR020608
6 · The paper itself

Abstract

Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. This scoping review seeks to summarize what is known about pediatric home-based hospice and/or palliative care and to identify gaps in the current research. Following Arskey and O'Malley's scoping review framework, we searched four databases for studies focused on pediatric home-based hospice and/or palliative care programs. Studies were included if they were published between 2000 and 2024, available in English, and focused on children and young adults receiving palliative or hospice care at home, including via telehealth, in the pediatric system. Of 2,552 results initially identified, 96 met our inclusion criteria and were included in this review. Common themes emerged including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes. Key research gaps included small sample sizes, limited use of control groups and scarcity of randomized clinical trials, difficulties including the perspective of the ill child in research, and a need for longitudinal studies on the effects of home-based hospice and/or palliative care on children and families. Given the compelling evidence for the benefits of pediatric home-based hospice and/or palliative care, further research into disparities in care access, best models of care, and novel payment models are critical.

Indexed as

Home Care ServicesHospice CarePalliative CarePediatricsChildHumansHome-based careHospicePalliativePediatricsScoping review

Identifiers

PMID42143376
PMCPMC13348688

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.