Evidence map›Paper›PMID 42143268›Full record

ArticleBMC neurology2026

Experiences and challenges of caregivers of children with cerebral palsy in Magba subdivision, Cameroon: a qualitative analysis.

Helen Lonn, Antor Odu Ndep, Bernadine Nsa Ekpenyong, Lynn Cockburn, Awa Jacques Chirac, Agho Tsangue Glory Tchiaze, Golda H M Jingkuo, Eucheria E Abua, Msughaondo Check Isho

Abstract read
In one paragraph

Article in BMC neurology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Helen LonnDepartment of Public Health, Faculty of Allied Medical Sciences, College of Medical Sciences, University of Calabar, Calabar, Nigeria. helenlonn2018@gmail.com.ORCID http://orcid.org/0009-0003-1219-448X
Antor Odu NdepDepartment of Public Health, Faculty of Allied Medical Sciences, College of Medical Sciences, University of Calabar, Calabar, Nigeria.ORCID http://orcid.org/0000-0002-3273-8195
Bernadine Nsa EkpenyongDepartment of Public Health, Faculty of Allied Medical Sciences, College of Medical Sciences, University of Calabar, Calabar, Nigeria.ORCID http://orcid.org/0000-0002-3531-5577
Lynn CockburnSchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada.ORCID http://orcid.org/0000-0001-9639-518X
Awa Jacques ChiracCameroon Baptist Convention Health Services, Bamenda, Cameroon.ORCID http://orcid.org/0000-0002-5449-2122
Agho Tsangue Glory TchiazeCameroon Baptist Convention Health Services, Bamenda, Cameroon.ORCID http://orcid.org/0000-0001-8672-0794
Golda H M JingkuoBrain Research Africa Initiative - BRAIN, University of Yaounde 1, Yaounde, Cameroon.ORCID http://orcid.org/0009-0007-7004-9503
Eucheria E AbuaTY Danjuma Foundation, Abuja, Nigeria.ORCID http://orcid.org/0009-0009-1757-598X
Msughaondo Check IshoShape Society Health Initiative (SSHI), Calabar, Nigeria.ORCID http://orcid.org/0009-0008-4627-6682

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCerebral palsy (CP) is one of the most common childhood neurodisability globally and disproportionately affects children in low- and middle-income countries. In Cameroon, limited epidemiological data, weak rehabilitation infrastructure, and entrenched sociocultural beliefs shape how CP is understood and managed. Children with CP often require lifelong support, placing substantial physical, emotional, and economic demands on family-caregivers, most commonly mothers. Understanding caregivers' lived experiences within specific cultural and resource-limited contexts is critical for informing inclusive and effective interventions. This study explored the lived experiences and challenges of family-caregivers of children with CP in Magba Subdivision, West Region of Cameroon.

methodThis study employed a qualitative exploratory design using in-depth interviews and inductive content analysis. Participants were family caregivers of children with CP, purposively recruited through community-based rehabilitation (CBR) services. In-depth, face-to-face interviews were conducted in English or local languages, audio-recorded, transcribed, and translated. Data were analysed using inductive content analysis following Elo and Kyngäs' approach. Findings were interpreted using Raina et al.'s multidimensional caregiving model.

resultsAll participants, aged 15-49 years, were family caregivers of children with CP, aged 4-15 years. Six interrelated themes emerged: (1) sociocultural challenges, including stigma, discrimination, and harmful spiritual beliefs framing CP as witchcraft, ancestral punishment, 'snake', or 'marine spirit'; (2) economic constraints arising from inability to engage in paid work and the absence of social protections; (3) physical caregiving burden characterised by exhaustion, chronic pain, and musculoskeletal strain; (4) inadequate specialized services and health information; (5) limited social/family support; and (6) limited access rehabilitation services. These challenges intensified caregiver isolation and emotional distress.

conclusionCaregiving for children with CP in Magba is shaped by intersecting sociocultural, economic, and systemic factors that extend beyond individual coping capacity. Strengthening culturally sensitive community-based rehabilitation, improving access to early diagnosis and rehabilitation, and implementing disability- and gender-responsive social protection policies are essential to reduce caregiver burden and promote inclusive child and family wellbeing in Cameroon.

Indexed as

CaregiversCerebral PalsyAdolescentAdultCameroonChildChild, PreschoolFemaleHumansMaleMiddle AgedQualitative ResearchYoung AdultCaregiver burdenCerebral palsyCommunity-based rehabilitationSociocultural beliefs

Identifiers

PMID42143268
PMCPMC13348292

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.