ArticleJournal of patient experience2026
A Nurse's Perspective Shaped by Illness: What Becoming the Zebra Revealed.
Article in Journal of patient experience, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare, multisystemic connective tissue disorder characterized by generalized joint hypermobility and pain with presence of other comorbidities affecting various organ systems. This hEDS patient perspective evaluates the growing disconnect between providers and patients in a rural setting. From working as a nurse at the bedside to now becoming the patient herself, M.K. illustrates how clinical assumptions, burnout, and limited understanding can lead to misdiagnosis and patient harm. This piece emphasizes the need for humility, empathy, and individualized, patient-centered care to be upheld in clinical practice. Recommendations are made for strengthening humanistic practice through intentional listening, self-reflection, and collaborative, patient-centered decision-making.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.