ArticleBMJ open2026
Exploring barriers to and experiences of palliative and end-of-life care for people living with HIV: a cross-sectional survey.
Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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Who cites it
1 citing paper in PubMed.
- Designing and delivering palliative and end of life care research with people living with HIV: reflections from a co-produced study.Research involvement and engagement · 2025Article
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Authors and funding
10 authors.
Funding
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Abstract
objectivesTo explore priorities, barriers to and experiences of palliative and end-of-life care from the perspectives of people living with HIV.
designCross-sectional online survey conducted in the UK between September 2024 and November 2024.
settingOnline survey of people living with HIV.
participantsThe sample (N=90) was adults living with HIV in the UK. The majority of participants were male (82.4%), gay men (77.8%) and white (88.1%).
resultsThe majority of participants (58.9%) reported knowing what palliative care was and that they could explain it to someone else; however, a misconception about palliative care being only for the end of life was evident. Over a quarter of respondents (27.8%) reported that their HIV status 'Sometimes' negatively affected their experiences of care in general practitioner, hospital and dental settings. The top three priorities for end of life were (1) being in a calm atmosphere, (2) being free of pain and (3) support with psychological well-being. Not being judged was also identified as a priority.
conclusionTo promote integration of palliative and end-of-life care into care pathways for people living with HIV, partnerships with HIV services and charities may be needed as well as tailored messaging and training for staff in generalist services.
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