Evidence map›Paper›PMID 42131731›Full record

ArticleInnovation in aging2026

Advance care planning by proxy for residential aged care facility residents: results of a pilot interventional study.

Laura Jones, Eve Rubli Truchard, Anca-Cristina Sterie, Yaëlle Rhyner, Elisabeth Iorio, Ralf J Jox

Registry-linked trialAbstract read
In one paragraph

Article in Innovation in aging, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04779684 (Promoting Self-determination for Institutionalized Older People Without Decision-making Capacity), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04779684 nacompletednot on this map

Promoting Self-determination for Institutionalized Older People Without Decision-making Capacity: Advance Care Planning by Proxy

TypeinterventionalSponsorRalf J. JoxRan2021 to 2023Enrolled20ConditionsAdvanced Dementia, Loss of Medical Decision Making CapacityArmsAdvance care planning by proxy for health care proxies of people without medical decision making capacity
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Laura JonesChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0002-9862-4908
Eve Rubli TruchardChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0003-3666-563X
Anca-Cristina SterieChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0003-1607-5229
Yaëlle RhynerCentre Senior, Ensemble Hospitalier de la Côte, Morges Hospital, Morges, Switzerland.
Elisabeth IorioService of Clinical Practice Development, Ensemble Hospitalier de la Côte, Morges Hospital, Morges, Switzerland.
Ralf J JoxChair of Geriatric Palliative Care, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.ORCID https://orcid.org/0000-0002-3040-4714

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background and Objectives: Advance care planning (ACP) allows people with decision-making capacity (DMC) to stipulate their wishes for medical treatment if they lose this capacity. However, many lose DMC before expressing their treatment wishes. Supplementary ACP models, conducted with health care proxies (HCPs), could promote care that is as coherent as possible with the presumed wishes of people who have lost medical DMC. This study pilot-tested an ACP-by proxy (ACP-bp) intervention with HCPs of residential aged care facility (RACF) residents lacking medical DMC to examine the acceptability and feasibility of the intervention. Research Design and Methods: 21 HCPs of 20 RACF residents participated in this multi-method evaluation of a single-arm intervention pilot study. Proxy decisional conflict and facilitator (RACF health professionals) self-efficacy were measured pre- and post-intervention. Semi-structured interviews were conducted with HCPs and facilitators. Interviews were audio-recorded, transcribed verbatim, and analyzed thematically. Results: The intervention significantly reduced proxy decisional conflict. Feasibility was threatened by health professional, proxy, and physician time, and RACF health professional turnover. Proxies and facilitators indicated that ACP-bp promoted in-depth discussions of residents' lives, thereby improving health professionals' knowledge and connection with residents, as well as proxy confidence. It promoted communication and cooperation between proxies and health professionals and provided clear documentation in case of emergency. Discussion and Implications: The intervention was acceptable for all participants. Future research should focus on the most efficient models for implementing ACP-bp and establish their validity in promoting care that is coherent with patient wishes through a cluster randomized control study. Clinical Trial Registration Number: NCT04779684.

Indexed as

Decision-makingDementiaInstitutional care/residential careLong-term carePerson-centered care

Identifiers

PMID42131731
PMCPMC13161567

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.