Evidence map›Paper›PMID 42131581›Full record

ArticleData science journal2026

Open Science, Health Data and Epistemic Harms: A Multidisciplinary Reflection.

Tatenda Chatikobo, Frances Griffiths, Nikita Hayden, Gary Leeming, Ankita Mishra, Eva Morris, Luca Schirru, Nathanael Sheehan, Andrew Williams, Sharifah Sekalala

Abstract read
In one paragraph

Article in Data science journal, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Tatenda ChatikoboUniversity of Warwick, United Kingdom.ORCID https://orcid.org/0000-0003-2936-7415
Frances GriffithsUniversity of Warwick, United Kingdom.ORCID https://orcid.org/0000-0002-4173-1438
Nikita HaydenUniversity of Sheffield, United Kingdom.ORCID https://orcid.org/0000-0003-1104-3885
Gary LeemingUniversity of Liverpool, United Kingdom.ORCID https://orcid.org/0000-0002-5554-5302
Ankita MishraUniversity of Sheffield, United Kingdom.ORCID https://orcid.org/0000-0002-0061-4884
Eva MorrisUniversity of Oxford, United Kingdom.ORCID https://orcid.org/0000-0002-1075-6544
Luca SchirruBrazilian Copyright Institute, Brazil.ORCID https://orcid.org/0000-0002-4706-3776
Nathanael SheehanTechnical University of Munich, Germany.ORCID https://orcid.org/0000-0002-2779-0976
Andrew WilliamsUniversity of Warwick, United Kingdom.ORCID https://orcid.org/0000-0003-1591-8773
Sharifah SekalalaUniversity of Warwick, United Kingdom.ORCID https://orcid.org/0000-0002-5434-5245

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Open Science (OS) promises to democratise knowledge and reduce epistemic inequalities. However, a critical analysis reveals the potential of OS to amplify structural vulnerabilities, especially for people and communities already at the margins. With a particular focus on health data, this interdisciplinary essay examines how OS infrastructures perpetuate epistemic harms through the dominance of Eurocentric knowledge norms, legal regimes and corporate capture. Amidst the rapidly evolving health and data landscape, realising the social justice potential of OS, especially in healthcare, demands moving beyond techno-optimism to approaches that centre plural epistemologies, relational accountability and community empowerment.

Indexed as

epistemic harmshealth dataOpen Sciencepublic healthresearch datasocial justice

Identifiers

PMID42131581
PMCPMC7619076

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.