Evidence map›Paper›PMID 42129879›Full record

ArticleAllergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology2026

Comprehensive care for hereditary angioedema: lessons learned from HAEmophilia Treatment Centers.

Kelsey Uminski, Dawn Goodyear

Abstract readLetter
In one paragraph

Article in Allergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Kelsey UminskiDivision of Hematology and Hematological Malignancies, Department of Medicine, Foothills Medical Centre, University of Calgary, 1403 29 St NW, Calgary, AB, T2N 2T9, Canada. kelsey.uminski@ucalgary.ca.
Dawn GoodyearDivision of Hematology and Hematological Malignancies, Department of Medicine, Foothills Medical Centre, University of Calgary, 1403 29 St NW, Calgary, AB, T2N 2T9, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Hereditary angioedema (HAE) is a rare, chronic disorder that requires coordinated, multidisciplinary care extending beyond acute attack management. Drawing on the successful comprehensive care framework established in Hemophilia Treatment Centers, this manuscript proposes a structured model for HAE care that emphasizes centralized care coordination, multidisciplinary teams, emergency preparedness, patient and caregiver education, psychosocial support, equitable access to emerging therapies, and integrated research and advocacy. By adapting lessons learned from hemophilia care, the proposed model aims to improve patient outcomes, empower individuals living with HAE, and provide a roadmap for implementing standardized, patient-centered care in rare disease management.

Indexed as

Care coordinationComprehensive careEmergency preparednessHemophiliaHereditary angioedemaPatient educationRare diseases

Identifiers

PMID42129879
PMCPMC13169828

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.