Evidence map›Paper›PMID 42121131›Full record

ArticleBMC public health2026

Needs of parents during their intrauterine or perinatal child loss - a qualitative multi-method study.

Julian Siepmann, Lydia Bauernfeind, Daniela Nuber-Fischer, Christian Rester, Karsten Gensheimer, Fritz Sterr

Registry-linked trialAbstract read
In one paragraph

Article in BMC public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06771661 (Parents' Experience of Child Loss During Pregnancy or Birth - an Explorative, Sequential Mixed-methods Study), which is not on this map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06771661 recruitingnot on this map

Parents' Experience of Child Loss During Pregnancy or Birth - an Explorative, Sequential Mixed-methods Study

TypeobservationalSponsorFritz SterrRan2024 to 2026Enrolled50ConditionsStillbirth and Fetal Death, Miscarriages, ExperienceArmsWorkshops, Focus group interviews, Narrative interviews, Delphi approach
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Julian SiepmannDeggendorf Institute of Technology, Faculty of Applied Healthcare Sciences, Land-Au 27, Deggendorf, 94469, Germany.ORCID 0009-0001-2898-3008
Lydia BauernfeindDeggendorf Institute of Technology, Faculty of Applied Healthcare Sciences, Land-Au 27, Deggendorf, 94469, Germany.ORCID 0009-0008-3227-7772
Daniela Nuber-Fischer, Munich, Germany.
Christian ResterDeggendorf Institute of Technology, Faculty of Applied Healthcare Sciences, Land-Au 27, Deggendorf, 94469, Germany.ORCID 0000-0003-4666-7954
Karsten GensheimerDeggendorf Institute of Technology, Faculty of Applied Healthcare Sciences, Land-Au 27, Deggendorf, 94469, Germany.ORCID 0009-0003-5004-0326
Fritz SterrDeggendorf Institute of Technology, Faculty of Applied Healthcare Sciences, Land-Au 27, Deggendorf, 94469, Germany. fritz.sterr@th-deg.de.ORCID 0000-0002-8185-319X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe loss of a child during pregnancy or birth is a profound and enduring experience that deeply shapes the lives of families. However, little is known about how parents experience the immediate moment of loss, including the diagnosis and medical procedures in the hospital. As a result, there is a lack of guidelines and recommendations for professionals on how to appropriately support affected parents.

aimTo explore the needs of parents during their intrauterine or perinatal child loss.

methodsWe conducted a qualitative multi-method study with world cafés and focus groups in 2025. In this study, 16 German-speaking parents who had lost their child during pregnancy in the last 12 months took part. Data was collected using field notes, photos and audio records. Analysis of data followed an inductive thematic analysis by Braun and Clarke, which was performed by two researchers.

findingsThe analysis revealed the three principal themes 'experiencing implications of child loss', 'emerging needs and demands related to child loss' and 'individual strategies to cope with the situation'. The needs were diverse and included the requirement for social support, demands on healthcare professionals and adjustments to administrative processes. In addition, the importance of creating memories with the child was emphasized, as was the need for safety and protection, having time and pausing, and being in control. Finally, the need to be strong, to be involved and to participate was also emphasized, as was understanding one's own situation and overcoming tensions.

conclusionParents during intrauterine or perinatal child loss show complex needs. These must be addressed to prevent negative consequences. Healthcare professionals are responsible for the course of parents' treatment and linked outcomes. CLINICAL

trial registrationClinicalTrials.gov Identifier NCT06771661, registered on January 13th, 2025.

Indexed as

Fetal DeathParentsPerinatal DeathStillbirthAdaptation, PsychologicalAdultFemaleFocus GroupsGermanyHumansInfant, NewbornPregnancyQualitative ResearchSocial SupportChild lossFetal deathMiscarriageParentsPregnancy lossQualitative studyStillbirth

Identifiers

PMID42121131
PMCPMC13169847

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.