Evidence map›Paper›PMID 42118351›Full record

ArticleJournal of neuro-oncology2026

Developing a core outcome set for the NeuroPoint Alliance Quality Outcomes Database Pediatric Tumor Surgery Registry: a modified Delphi study.

David S Hersh, Anthony L Asher, Mohamad Bydon, Maliya Delawan, Ian F Pollack, Jason S Hauptman, Eric M Thompson, Michael C Dewan, S Hassan A Akbari, Karl Balsara and 24 more

Abstract read
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In one paragraph

Article in Journal of neuro-oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

34 authors.

David S HershDepartment of Neurosurgery, UConn School of Medicine, Farmington, CT, USA. dhersh@connecticutchildrens.org.ORCID http://orcid.org/0000-0003-1177-2201
Anthony L AsherDepartment of Neurosurgery, Prisma Health, Greenville, SC, USA.
Mohamad BydonDepartment of Neurological Surgery, The University of Chicago, Chicago, IL, USA.
Maliya DelawanDepartment of Neurological Surgery, The University of Chicago, Chicago, IL, USA.
Ian F PollackDepartment of Neurological Surgery, University of Pittsburgh School of Medicine, UPMC Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.
Jason S HauptmanDivision of Pediatric Neurological Surgery, Barrow Neurological Institute at Phoenix Children's, Phoenix, AZ, USA.
Eric M ThompsonDepartment of Neurosurgery, Washington University School of Medicine in St. Louis; St. Louis Children's Hospital, St. Louis, MO, USA.
Michael C DewanDepartment of Neurological Surgery, Vanderbilt University Medical Center; Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USA.
S Hassan A AkbariDivision of Pediatric Neurosurgery, Johns Hopkins All Children's Hospital, St. Petersburg, FL, USA.
Karl BalsaraDepartment of Neurosurgery, University of Oklahoma Health Sciences Center, Oklahoma Children's Hospital OU Health, Oklahoma City, OK, USA.
Randaline R BarnettDepartment of Neurosurgery, University of Kentucky/UK HealthCare, Lexington, KY, USA.
Marian M BercuDivision of Pediatric Neurosurgery, Helen DeVos Children's Hospital, Corewell Health, Grand Rapids, MI, USA.
Bruno P BragaDivision of Pediatric Neurosurgery, Children's Medical Center Dallas, Dallas, TX, USA.
Daniel E CoutureDepartment of Neurosurgery, Wake Forest University School of Medicine, Winston-Salem, NC, USA.
Michael DeCuypereDivision of Pediatric Neurosurgery, Ann & Robert H. Lurie Children's Hospital of Chicago; Department of Neurological Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
David GarciaDivision of Pediatric Neurosurgery, Children's Mercy Kansas City, Kansas City, MO, USA.
Joanna GernsbackDepartment of Neurosurgery, UT Health San Antonio, San Antonio, TX, USA.
Kimberly M HamiltonDepartment of Neurosurgery, University of North Carolina School of Medicine/UNC Health, Chapel Hill, NC, USA.
David H HarterDivision of Pediatric Neurosurgery, Department of Neurosurgery, NYU Grossman School of Medicine/NYU Langone Health, New York, NY, USA.
Joel KatzDivision of Pediatric Neurosurgery, Akron Children's Hospital, Akron, OH, USA.
Kevin K KumarDepartment of Neurosurgery, Dell Medical School, The University of Texas at Austin, Dell Children's Medical Center, Austin, TX, USA.
Daphne LiDivision of Pediatric Neurosurgery, Chicagoland Children's Health Alliance, Advocate Children's Hospital/Comer Children's Hospital, Chicago, IL, USA.
Neena I MarupudiDepartment of Neurosurgery, University of Michigan/C.S. Mott Children's Hospital, Ann Arbor, MI, USA.
Laura M ProloDepartment of Neurosurgery, Stanford University School of Medicine/Stanford Medicine Children's Health, Stanford, CA, USA.
Ann M RitterDepartment of Neurosurgery, Virginia Commonwealth University Health System, Children's Hospital of Richmond, Richmond, VA, USA.
Cameron SadeghDepartment of Neurological Surgery, University of California, Davis, Sacramento, CA, USA.
Afshin SalehiDepartment of Neurosurgery, University of Nebraska Medical Center; Children's Nebraska, Omaha, NE, USA.
Carolina Sandoval-GarciaDepartment of Neurosurgery and Pediatrics, University of Minnesota, Minneapolis, MN, USA.
Jignesh K TailorDepartment of Neurological Surgery, Indiana University School of Medicine, Riley Hospital for Children, Indianapolis, IN, USA.
Tomoko TanakaDepartment of Neurosurgery, University of Arkansas for Medical Sciences, Little Rock, AR, USA.
Albert TuDivision of Neurosurgery, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.
Scott D WaitCarolina Neurosurgery & Spine Associates; Levine Children's Hospital, Charlotte, NC, USA.
Jesse L WinerDepartment of Neurological Surgery, Oregon Health & Science University, Doernbecher Children's Hospital, Portland, OR, USA.
Mark M SouweidaneDepartment of Neurological Surgery and Pediatrics, Weill Cornell Medicine/New York Presbyterian, New York, NY, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeProspective, multi-institutional surgical data collection in pediatric neuro-oncology remains limited despite substantial variation in operative and perioperative management across institutions. To address this, we are developing the NeuroPoint Alliance (NPA) Quality Outcomes Database (QOD) Pediatric Tumor Surgery Registry. Here, we used a modified Delphi process to define a core outcome set for the registry.

methodsA modified Delphi study was conducted among pediatric neurosurgeons serving as site principal investigators for the proposed registry. Candidate data elements were rated on a 9-point Likert scale. Consensus for inclusion was predefined as ≥70% of respondents rating an item 7-9 and ≤15% rating it 1-3; consensus for exclusion was defined as the reverse. Items not reaching consensus in Round 1, along with new items derived from free-text responses, were re-evaluated in Round 2. Near-consensus items after Round 2 underwent discussion and re-rating in a final virtual round.

resultsIn Round 1, 48 of 83 candidate items (57.8%) reached consensus for inclusion, while 35 advanced to Round 2. Fourteen additional candidate items were generated from free-text suggestions, resulting in 49 items evaluated in Round 2; 13 reached consensus for inclusion. Seventeen items were classified as near-consensus and advanced to the final round, in which 4 reached consensus for inclusion and 1 for exclusion. Across all three rounds, 66 items achieved consensus.

conclusionsThis modified Delphi study established a consensus-based core outcome set for the NPA QOD Pediatric Tumor Surgery Registry, providing a practical foundation for standardized, prospective, multicenter pediatric neurosurgical oncology data collection.

Indexed as

Databases, FactualNeurosurgical ProceduresOutcome Assessment, Health CareRegistriesChildConsensusDelphi TechniqueHumansCore outcome setDelphiMulti-centerNeuro-oncologyPediatricRegistry

Identifiers

PMID42118351

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.