Evidence map›Paper›PMID 42115357›Full record

ArticlePediatric nephrology (Berlin, Germany)2026

Evaluating construct validity of the PRO-Kid life participation tool for children living with chronic kidney disease.

Karma Abukasm, Kimberley Widger, Adam Rapoport, Rahul Chanchlani, Janis M Dionne, Susan Samuel, Lorraine Hamiwka, Sara N Davison, Veronica Lai, Simon A Carter and 6 more

Abstract readValidation Study
PubMed Publisher
In one paragraph

Article in Pediatric nephrology (Berlin, Germany), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

16 authors.

Karma AbukasmDepartment of Pediatrics, University of British Columbia, Vancouver, Canada.
Kimberley WidgerLawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada.
Adam RapoportDepartment of Pediatrics, The Hospital for Sick Children, Toronto, Canada.
Rahul ChanchlaniDivision of Pediatric Nephrology, Department of Pediatrics, McMaster University, Hamilton, Canada.
Janis M DionneDepartment of Pediatrics, University of British Columbia, Vancouver, Canada.
Susan SamuelDepartment of Pediatrics, University of British Columbia, Vancouver, Canada.
Lorraine HamiwkaDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Sara N DavisonDivision of Nephrology and Immunology, University of Alberta, Edmonton, Canada.
Veronica LaiDepartment of Psychology, University of New Brunswick, Saint John, New Brunswick, Canada.
Simon A CarterDepartment of Paediatrics, University of Melbourne, Melbourne, Australia.
Ke Fan BeiDepartment of Immunology, University of Toronto, Toronto, Canada.
Kelly LoverockCanSOLVE CKD Network, Ottawa, Canada.
Banke OketolaChildren's Hospital Research Institute of Manitoba, Winnipeg, Canada.
Brenden DufaultGeorge and Fay Yee Centre for Healthcare Innovation, Winnipeg, Canada.
Mina Matsuda-Abedini *Department of Pediatrics, University of British Columbia, Vancouver, Canada.
Allison B Dart *Children's Hospital Research Institute of Manitoba, Winnipeg, Canada. adart@hsc.mb.ca.ORCID http://orcid.org/0000-0002-4718-9408

Funding

Children's Hospital Research Institute of Manitoba OG2019-10
6 · The paper itself

Abstract

backgroundLife participation is a priority outcome for children and families living with chronic kidney disease (CKD). This study aimed to assess the construct validity of the PRO-Kid-LP, a novel three-item tool measuring CKD's impact on children's life participation.

methodsParticipants were children aged 8-18 years from Canada, with stages 3-5 CKD, who were part of the PRO-Kid validation cohort. Using 5-point adjectival scales, the PRO-Kid-LP tool measures CKD's impact on three domains over 1 week: (1) school participation, (2) meaningful time with family and friends, (3) participation in hobbies/recreational activities. Higher scores reflected more impact of CKD on life participation. The PedsQL™ and PRO-Kid symptom assessment tool were also completed. Construct validity was evaluated with Spearman correlations and internal consistency, with Cronbach's alpha (C

resultsNinety-seven children were included, with a mean age of 14.4 years (IQR 11, 16.6), and 62.9% (61/97) were male. Impact on life participation increased by CKD stage (p = 0.003). There was an inverse relationship between PRO-Kid-LP and PedsQL™ scores (r =  - 0.65, p < 0.001), and a positive relationship between PRO-Kid-LP scores and CKD symptoms (PRO-Kid frequency [r = 0.51, p < 0.001] and impact [r = 0.49, p < 0.001] scores). PRO-Kid-LP scores were associated with the PRO-Kid "Feeling left out" item (p < 0.001). Internal consistency was high (C

conclusionsThis study supports the validity of the PRO-Kid-LP to quantify the impact of CKD on life participation in children with stages 3-5 CKD. The tool shows internal consistency, a positive correlation with symptom burden, and a negative correlation with quality of life.

Indexed as

Quality of LifeRenal Insufficiency, ChronicSocial ParticipationAdolescentCanadaChildFemaleHumansMalePsychometricsReproducibility of ResultsSurveys and QuestionnairesChronic kidney diseaseLife participationPatient-oriented researchPatient-reported outcome measureQuality of life

Identifiers

PMID42115357

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.