Evidence map›Paper›PMID 42114077›Full record

ReviewNeurology. Clinical practice2026

Addressing Barriers to Transitioning Pediatric Patients With Epilepsy to Adult Health Care in the United States: A Narrative Review.

M Scott Perry, Fábio A Nascimento, Jesus E Pina-Garza, Michael G Chez, José A Ferreira, Adrian L Rabinowicz, Enrique Carrazana

Abstract readReview
In one paragraph

Review in Neurology. Clinical practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

M Scott PerryJane and John Justin Institute for Mind Health, Cook Children's Medical Center, Fort Worth, TX.ORCID 0000-0002-1825-846X
Fábio A NascimentoDepartment of Neurology, Washington University School of Medicine, St. Louis, MO.ORCID 0000-0002-7161-6385
Jesus E Pina-GarzaTriStar Centennial Children's Hospital, Nashville, TN.ORCID 0009-0000-1207-8356
Michael G ChezSutter Neuroscience Institute, Sacramento, CA.ORCID 0009-0007-0035-6196
José A FerreiraPediatric Epilepsy and Neurology Specialists, Tampa, FL.ORCID 0000-0003-1011-6368
Adrian L RabinowiczCenter for Molecular Biology and Biotechnology, Charles E. Schmidt College of Science, Florida Atlantic University, Boca Raton, FL.ORCID 0000-0003-1299-0606
Enrique CarrazanaNeurelis, Inc; and.ORCID 0000-0001-8788-0722

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purpose of reviewAdolescents with childhood-onset epilepsy, along with their families, must navigate a complex constellation of uncertainties related to physical, psychological, and social changes as well as medical and possibly legal ramifications as they approach adulthood. Transferring from the familiar pediatric setting to the adult health care system can be a time of concern because of actual and/or perceived differences between the settings (e.g., uncertainty about the patient entering a completely new system, providers focused on adults rather than children, patient behavior in a new environment, and less parental involvement). These concerns can be eased by a focused transition program, with clinicians providing a guiding hand for a smooth transfer into adult health care. RECENT

findingsModels of transition processes involving epilepsy education, assessment of readiness for transfer, and validation of patient preparedness for self-management, when possible, are available in toolkits and publications. These resources address the need for focused transition care for patients with epilepsy; however, practical suggestions that clearly discuss barriers to transition in the US fee-for-service health care system, and strategies for addressing those barriers, are lacking. SUMMARY: In this study, we discuss features of transition programs for patients with epilepsy outside the United States and for patients in the United States with other disease conditions. We then detail the barriers to transition for patients with epilepsy in the United States, compiling them into categories with tables for quick and clear access. Along with the barriers, we provide clinicians treating adolescent patients with epilepsy with resources from which they can select the appropriate features best suited for addressing their institution's needs as well as the needs of patients, including those with complex epilepsies, such as developmental and epileptic encephalopathies.

Indexed as

EpilepsyTransition to Adult CareAdolescentAdultChildHumansUnited States

Identifiers

PMID42114077
PMCPMC13155695

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.