ArticleRevista da Escola de Enfermagem da U S P2026
The complexity of caregiving amid challenges: experiences of families with young caregivers.
Article in Revista da Escola de Enfermagem da U S P, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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7 authors.
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Abstract
objectiveTo build a substantive theoretical model on the trajectory of families with young caregivers in the process of caring for a family member with a disabling condition. METHODOLOGY: Exploratory, qualitative study, conducted using the references of Grounded Theory and Complex Thinking. Data collection took place between August 2022 and October 2023, in the homes of 15 young people and 7 family caregivers. The analysis followed three stages: open, axial, and selective coding, with the support of ATLAS.ti® software.
resultsThe trajectory of families with young caregivers proved to be a process permeated by barriers to care, relational and ethical challenges, and multiple repercussions for young people and caregivers. Barriers associated with family unavailability and care overload were evident, as were challenges linked to the resistance of the family member being cared for, fear of reporting, and concern for the young caregiver's quality of life, as well as consequences that impact the well-being of young people and their guardians.
conclusionCare provided by young people is a complex, multifactorial, and dynamic phenomenon that requires attention from health professionals, especially in primary care, based on a comprehensive understanding of the contexts and social determinants.
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