Evidence map›Paper›PMID 42100939›Full record

ArticleMedical care2026

Geographic Variation in Missing Race and Ethnicity Data in Minimum Data Set 3.0.

Jennifer Tjia, Francesca L Troiani, Anna Wyndham, Sruthi Tanikella, Joshua Rumbut, Maira A Castaneda-Avila

Abstract read
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Article in Medical care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Jennifer TjiaDepartment of Population and Quantitative Health Sciences, Division of Epidemiology, Worcester, MA.ORCID 0000-0003-4541-0460
Francesca L TroianiDepartment of Population and Quantitative Health Sciences, Division of Epidemiology, Worcester, MA.
Anna WyndhamIntern, New York University, New York, NY.
Sruthi TanikellaDepartment of Population and Quantitative Health Sciences, Division of Epidemiology, Worcester, MA.
Joshua RumbutDepartment of Population and Quantitative Health Sciences, Division of Quantitative Methods Core, Worcester, MA.
Maira A Castaneda-AvilaDepartment of Population and Quantitative Health Sciences, Division of Epidemiology, Worcester, MA.

Funding

Longitudinal Patterns of Symptoms, Medication and Hospice Use in Nursing Home Residents Approaching End of LifeK24AG068300 · NIA · UNIV OF MASSACHUSETTS MED SCH WORCESTER · PI TJIA, JENNIFER · 2020 to 2024
$949k
Clinical Research Scholar Award KL2TR001455NIA NIH HHS K24 AG068300
6 · The paper itself

Abstract

backgroundRace and ethnicity measures in administrative data can vary geographically. The extent of this challenge in US nursing homes is not well described.

objectivesTo describe geographic variation in missing race and ethnicity data in the Minimum Data Set (MDS) 3.0 and Medicare claims, and to compare discrepancies across data sources. RESEARCH

designCross-sectional study. SUBJECTS: Medicare beneficiaries with MDS 3.0 records between 2014 and 2018. The Medicare Beneficiary Summary File provided demographic information. MEASURES: Missingness of MDS race and ethnicity data by state, and misclassification of Medicare race and ethnicity enrollment database (EDB) and Research Triangle Institute (RTI) variables compared with MDS. We calculate the sensitivity, specificity, and positive predictive value of the EDB and RTI variables relative to the MDS.

resultsAmong 18.1 million nursing home residents pooled across 2014-2018, geographic variation in missing race and ethnicity in the MDS 3.0 ranged from 1.2% to 14.7%. Compared with MDS, misclassification of residents classified as Hispanic in MDS ranged from 48.1% to 89.2% for EDB and 0.5% to 44.8% for RTI. Misclassification of residents classified as Asian American/Pacific Islander in MDS ranged from 29.4% to 77.2% for EDB and 12.7% to 65.4% for RTI. Misclassification of residents classified as Black ranged from 0% to 14.2% for EDB and 0% to 16.2% for RTI. Overall, the RTI variables provided better sensitivity and specificity of race and ethnicity than the EDB.

conclusionMissing race and ethnicity data in the MDS varies geographically, as do discrepancies between MDS and EDB and RTI variables. Thoughtful consideration of these issues is recommended when handling missing MDS race and ethnicity data.

Indexed as

EthnicityMedicareNursing HomesRacial GroupsCross-Sectional StudiesDatabases, FactualHumansNursing Home ResidentsUnited Statesadministrative dataMedicarenursing homesrace

Identifiers

PMID42100939
PMCPMC13641926

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.