Evidence map›Paper›PMID 42099245›Full record

ArticleJournal of palliative medicine2026

"We Talk About Everything": Experiences with Digital Health Communication in Palliative Care.

Sarah Nouri, Courtney R Lyles, Carly Zapata, Roman Martinez, Jasmine Gonzalez, Vincent Le, Yidi Wang, Mara Quinn, Carrie Huang, Claudia Perez-Vaughan and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of palliative medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Sarah NouriDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.ORCID 0000-0001-7163-0366
Courtney R LylesDepartment of Public Health Sciences, Center for Healthcare Policy and Research, University of California Davis, Sacramento, California, USA.
Carly ZapataDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.
Roman MartinezSchool of Medicine, University of California San Francisco, San Francisco, California, USA.
Jasmine GonzalezSan Francisco Free Clinic, San Francisco, California, USA.
Vincent LeDepartment of Medicine, Division of Palliative Care, Alameda Health System, Oakland, California, USA.
Yidi WangSchool of Medicine, University of California San Francisco, San Francisco, California, USA.
Mara QuinnDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.
Carrie HuangDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.
Claudia Perez-VaughanDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.
Steven Z PantilatDepartment of Medicine, Division of Palliative Medicine, University of California San Francisco, San Francisco, California, USA.ORCID 0000-0003-1004-7892
Christine S RitchieCenter for Aging and Serious Illness, Massachusetts General Hospital and Harvard Medical School, Boston, Massachusetts, USA.
Rebecca L SudoreDepartment of Medicine, Division of Geriatrics, University of California San Francisco, San Francisco, California, USA.

Funding

Translational Research Core - Health Engagement & Action Translational (HEAT)P30DK092924 · NIDDK · KAISER FOUNDATION RESEARCH INSTITUTE · PI Alyce Sophia Adams, HILARY Kessler SELIGMAN · 2011 to 2026
$9.2M
Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
CARES: A Caregiver-Facing Digital Symptom Assessment Tool for Marginalized Older Adults with Serious IllnessK76AG088348 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Sarah Nouri · 2024 to 2026
$728k
NIA NIH HHS K24 AG054415NIA NIH HHS K76 AG088348NIDDK NIH HHS P30 DK092924
6 · The paper itself

Abstract

backgroundUse of digital communication tools (e.g., telehealth, patient portals) is increasing in outpatient palliative care (OPC).

objectiveAssess patient/caregiver experiences with digital communication tools.

designQualitative. SETTING/SUBJECTS: Inclusion criteria were age ≥18 years, English/Spanish/Cantonese-speaking, and ≥1 telehealth OPC visit in the prior year. If patients could not converse by phone, we interviewed their caregivers. MEASURES: We developed an interview guide using the Capability-Opportunity-Motivation-Behavior framework. We analyzed semi-structured interviews using thematic analysis.

resultsAmong 32 participants, 10 were caregivers, 11 Spanish-speaking, 9 Cantonese-speaking. Theme 1: Video and in-person visits have important and distinct roles. Theme 2: Establishing a trusting rapport over video is possible. Theme 3: Engagement can be high with the patient portal despite poor usability.

conclusionsA flexible approach offering both video and in-person visits is ideal. Usability is a key factor in patient portal engagement. Our findings underscore the need to advocate for a permanent Medicare telehealth extension.

Indexed as

CaregiversCommunicationPalliative CarePatient PortalsTelemedicineAdultAgedAged, 80 and overDigital HealthFemaleHumansInterviews as TopicMaleMiddle AgedQualitative Researchcommunicationdigital healthpatient portalstelehealth

Identifiers

PMID42099245
PMCPMC13637034

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.