Evidence map›Paper›PMID 42095464›Full record

ArticleJournal of Parkinson's disease2026

Practical approaches to inclusive recruitment practices in Parkinson's disease research.

Lana M Chahine, Naomi Louie, Elizabeth Disbrow, Alexis Marbach, Samantha Augenbraun, Bao-Tran Nguyen, Ashani Johnson-Turbes, Carly Parry, Sabrina Avripas, Shivika Chandra and 29 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of Parkinson's disease, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

39 authors.

Lana M ChahineDepartment of Neurology, University of Pittsburgh, Pittsburgh, PA, USA.
Naomi LouieThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Elizabeth DisbrowDepartment of Neurology, Louisiana State University Health Sciences Center Shreveport, Shreveport, LA, USA.
Alexis MarbachNORC at the University of Chicago, Chicago, IL, USA.
Samantha AugenbraunNORC at the University of Chicago, Chicago, IL, USA.
Bao-Tran NguyenNORC at the University of Chicago, Chicago, IL, USA.
Ashani Johnson-TurbesNORC at the University of Chicago, Chicago, IL, USA.
Carly ParryNORC at the University of Chicago, Chicago, IL, USA.
Sabrina AvripasNORC at the University of Chicago, Chicago, IL, USA.
Shivika ChandraDepartment of Neurology, UTHealth - Houston, Houston, TX, USA.
Marissa DeanDepartment of Neurology, University of Alabama at Birmingham, Birmingham, AL, USA.
Erin R FosterProgram in Occupational Therapy, Washington University in St. Louis, St. Louis, MO, USA.
Deborah HallDepartment of Neurology, Rush University Medical Center, Chicago, IL, USA.
Vanessa HinsonDepartment of Neurology, Medical University of South Carolina, Charleston, SC, USA.
Camilla KilbaneNeurological Institute, University Hospitals Cleveland, Cleveland, OH, USA.
Scott A NorrisDepartment of Neurology, Washington University in St. Louis, St. Louis, MO, USA.
Ashley RawlsDepartment of Neurology, University of Florida, Gainesville, FL, USA.
Cabell JonasDepartment of Neurology, Mid-Atlantic Permanente Research Institute, Kaiser Permanente Mid-Atlantic States, Largo, MD, USA.
Ejaz A ShamimDepartment of Neurology, Mid-Atlantic Permanente Research Institute, Kaiser Permanente Mid-Atlantic States, Largo, MD, USA.
Lisa ShulmanDepartment of Neurology, University of Maryland, Baltimore, MD, USA.
Julia StaischDepartment of Neurology, Ochsner Clinic Foundation, New Orleans, LA, USA.
Erin Furr StimmingDepartment of Neurology, UTHealth - Houston, Houston, TX, USA.
Tao XieDepartment of Neurology, University of Chicago, Chicago, IL, USA.
Mackenzie WilcoxDepartment of Neurology, University of Pittsburgh, Pittsburgh, PA, USA.
Andrew AmeriDepartment of Neurology, Medical University of South Carolina, Charleston, SC, USA.
Sarah BreauxDepartment of Neurology, Ochsner Clinic Foundation, New Orleans, LA, USA.
Mahesh PadmanabanDepartment of Neurology, University of Chicago, Chicago, IL, USA.
Rainer von CoellnDepartment of Neurology, University of Maryland, Baltimore, MD, USA.
Andrew SingletonGlobal Parkinson's Genetics Program, Chevy Chase, MD, USA.
Cornelis BlauwendraatCoalition for Aligning Science, Chevy Chase, MD, USA.
Sara Bandres-CigaCenter for Alzheimer's Disease and Related Dementias, National Institute on Aging, National Institutes of Health, Bethesda, MD, USA.
Eda Baykal-CaglarThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Caitlin KelliherThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Kayleigh GreenwoodThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Alyssa O'GradyThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
J SolleThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Catherine M KopilThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Maggie McGuire KuhlThe Michael J. Fox Foundation for Parkinson's Research, New York, NY, USA.
Black and African American Connections to Parkinson's Disease (BLAAC PD) and the Global Parkinson's Genetics Program (GP2)

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In Parkinson's disease (PD), inclusive research recruitment practices are essential to ensure that study findings are generalizable to diverse populations. The definition and implementation of inclusive recruitment practices are guided by the principles of equity, justice, engagement, and sustainability. However, practical implementation guidance is lacking. This paper shares insights from the Black and African American Connections to Parkinson's Disease (BLAAC PD) study, a PD genetics research study being conducted in the United States that enrolls individuals with and without PD. The inclusive recruitment strategy in BLAAC PD centers around four areas: training and working with study personnel toward equitable research practices, partnering with community members, creating culturally resonant study materials, and customizing practices at the local level. We provide practical examples implemented by BLAAC PD to address each of these areas. We share the materials and tools that the study utilizes for site training, recruitment, and community outreach and engagement. These approaches have potential for application in other PD research studies, to achieve greater diversity in PD research.

Indexed as

Biomedical ResearchBlack or African AmericanParkinson DiseasePatient SelectionDiversity, Equity, InclusionHumansUnited Statescohort diversitygeneticsinclusive researchparkinson's diseaseracial health disparities

Identifiers

PMID42095464
PMCPMC13435172

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.