Evidence map›Paper›PMID 42094901›Full record

ArticleFrontiers in public health2026

Patient-centered burdens and economic outcomes among patients who are veterans, people with intellectual and developmental disabilities, and people living in rural areas and their caregivers: a scoping review.

Naomi Buell, Ella Shenkar, Sydney Kirsch, Diana Poehler, Olga Khavjou, Kristen Giombi

Abstract readScoping Review
In one paragraph

Article in Frontiers in public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Naomi BuellRTI International, Durham, NC, United States.
Ella ShenkarRTI International, Durham, NC, United States.
Sydney KirschRTI International, Durham, NC, United States.
Diana PoehlerRTI International, Durham, NC, United States.
Olga KhavjouRTI International, Durham, NC, United States.
Kristen GiombiRTI International, Durham, NC, United States.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: This review synthesized literature on patient-centered burdens and economic outcomes (PCBEOs) for three populations that may be underrepresented in the literature-military veterans, people with intellectual and developmental disabilities (IDD), and individuals living in rural areas-to better understand how PCBEOs are captured for these populations. Methods: We searched PubMed, CINAHL, EconLit, Web of Science, and APA PsycInfo (January 2015-April 2025) for U.S.-based studies of PCBEOs due to medical reasons for veterans, people with IDD, or people living in rural areas or their caregivers. We categorized PCBEOs into direct medical costs, direct non-medical costs, indirect impacts, and intangible burdens. We examined population-specific rationales for studying these outcomes reported in the studies. Results: Of 1,549 identified records, 126 met inclusion criteria. Intangible burdens were the most frequently reported PCBEOs ( Conclusion: The frequent reporting of intangible burdens across all populations highlights substantial emotional and psychological strains faced by these groups. Considerable variability in PCBEOs examined across populations reveals gaps in comprehensive assessment of the full range of PCBEOs that each group experienced. These findings underscore the need for systematic data collection to more fully capture the range of burdens for these populations.

Indexed as

CaregiversCost of IllnessDevelopmental DisabilitiesIntellectual DisabilityPatient-Centered CareRural PopulationVeteransHumansUnited Statescaregiving - informalintellectual and developmental disabilitiespatient-centered burdens and economic outcomesrural healthveteran health

Identifiers

PMID42094901
PMCPMC13139145

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.