Evidence map›Paper›PMID 42087776›Full record

ArticlePalliative & supportive care2026

Anticipatory grief among caregivers of people living with dementia: A scoping review.

Nury Alejandra Rodriguez Colmenares, Loreli Alvarez, James Gilbreath, Adelais Markaki, Julie Schexnayder, Frank Puga

Abstract readScoping Review
In one paragraph

Article in Palliative & supportive care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Nury Alejandra Rodriguez ColmenaresSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.ORCID https://orcid.org/0000-0002-0413-0967
Loreli AlvarezSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
James GilbreathUAB Libraries, University of Alabama at Birmingham, Birmingham, AL, USA.
Adelais MarkakiSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
Julie SchexnayderSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.
Frank PugaSchool of Nursing, University of Alabama at Birmingham, Birmingham, AL, USA.

Funding

Mental Health Experiences of Hispanic and Latinx ADRD CaregiversR01AG072569 · NIA · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI Frank Puga · 2022 to 2026
$3.1M
NIA NIH HHS R01 AG072569
6 · The paper itself

Abstract

objectivesAs Alzheimer's disease and related dementias (ADRD) progress, family caregivers may experience grief before the death of the person living with ADRD. This type of grief is commonly referred to as anticipatory grief, which can contribute to increased psychological distress (i.e., depressive and anxiety symptoms) and potentially affect caregivers' long-term mental health. This scoping review aimed to synthesize evidence on risk and resilience factors associated with anticipatory grief, its relationship with caregiver mental health, and psychosocial interventions targeting anticipatory grief among caregivers of people living with ADRD.

methodsGuided by the Stress Process Model and the Grief-Stress Model, a literature search was conducted in PubMed, CINAHL, Embase, Scopus, Web of Science, and PsycINFO in May 2025.

resultsThirty articles met the inclusion criteria. Caregiver characteristics, such as being a spousal caregiver and greater caregiving involvement, were associated with higher levels of anticipatory grief. Caregiving-related stressors and relationship changes across the ADRD trajectory were consistently linked to anticipatory grief across studies, while psychosocial resources, such as adaptive coping and social support, were generally associated with lower levels of anticipatory grief. Anticipatory grief was consistently associated with depressive symptoms. Intervention studies were limited, but those focused on acceptance and preparedness showed potential for reducing anticipatory grief. SIGNIFICANCE OF

resultsAnticipatory grief represents an important dimension of caregiver mental health that reflects ongoing loss. Conceptualizing anticipatory grief within caregiving stress frameworks highlights how vulnerability to distress may emerge from the interplay between caregiving stressors, relationship changes, and psychosocial resources. This conceptual framing may inform future research and palliative care interventions to support the well-being of family caregivers across the dementia trajectory.

Indexed as

Anticipation, PsychologicalCaregiversDementiaGriefAdaptation, PsychologicalHumansSocial SupportAnticipatory griefdementia caregiversdementia griefmental healthpre-death grief

Identifiers

PMID42087776
PMCPMC13202407

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.