Shared Experiences in Post-Rehabilitation COPD Care Management: A Qualitative Study From Patient and Care Manager Perspectives.

introductionAchieving long-term behavioural change in chronic disease management, particularly in chronic obstructive pulmonary disease (COPD), remains a significant challenge. Although maintenance programmes have been developed to extend the benefits of pulmonary rehabilitation, patient adherence is often comperomised by persistent symptoms, low motivation, and fragmented care. Research highlights the importance of therapeutic alliance, social support, and personalised follow-up to encourage long-term healthy behaviour. Care managers (CMs) may help facilitate these key elements by providing individualised support and coordination. The aim of this study is to identify key elements that support the sustainable implementation of the CM role in chronic care pathways, by exploring the shared experiences of COPD patients and CM involved in an 18-month remote follow-up post-rehabilitation programme.

methodsA qualitative descriptive study was conducted using semi-structured interviews with COPD patients and care managers who participated in the INSPIR'ACTION national experiment. This programme included an initial pulmonary rehabilitation phase followed by an 18-month remote follow-up. Interviews focused on the follow-up phase and were analysed using inductive thematic analysis.

resultsData saturation was reached with a final sample of 9 patients and 7 CMs. Patients described CMs as supportive professionals who helped sustain motivation, adherence to healthy behaviours, and continuity of care. The relationship was perceived as trustful and personalised, even in a remote format. CMs expressed pride in their role but also reported organisational challenges, including lack of recognition and insufficient time allocation. Both groups emphasised the importance of relational continuity and individualised support.

conclusionPatients and care managers described the CM as a key supportive figure offering personalised follow-up perceived as helping promote therapeutic engagement and behavioural change. Relational continuity throughout the remote follow-up was seen as fostering a trusting relationship that shaped participants' experience of the programme. By highlighting organisational elements that could influence implementation, our study may help inform future strategies to enhance the sustainable integration of care management in COPD care pathway. PATIENT OR PUBLIC CONTRIBUTION: COPD patients and CMs involved in the INSPIR'ACTION programme shared their experiences through interviews, helping to identify key factors for improving care manager support and long-term follow-up. Their input directly informed the study's findings and recommendations.