ArticleJournal of primary care & community health
Evaluating a Digital Patient Reported Outcome Measure for Long COVID in a Community Rehabilitation Service.
Article in Journal of primary care & community health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLong COVID presents with a wide range of persistent symptoms which can significantly affect daily functioning and increases pressure on already stretched National Health Service. A Digital Patient-Reported Outcome Measure application incorporating 4 outcome measure scales (COVID-19-Yorkshire Rehabilitation Scale, EuroQol 5 Dimension Scale, Modified Fatigue Impact Scale, and Medical Research Council Dyspnoea Scale) was introduced into a Long COVID community rehabilitation pathway in 2021. However, there was little known about its acceptability, uptake, or user experience.
methodsA qualitative service evaluation was conducted. Quantitative data was collected, over 2 months, from 100 people using the service, including registration, usage patterns, and demographics. Semi structured questionnaires collected qualitative data from 20 participants. Template analysis was used to explore experiences, enablers, and barriers.
resultsOf 100 participants, 38 were active app users, 46 were non active users, and 16 did not register. Engagement varied, depending on education employment status and digital literacy. Four themes emerged from qualitative data collected from 20 service users: Technology, Personal Experience, Symptom Tracking, and Support Requirements. Digital symptom monitoring was valued, but challenges were identified with navigation, clarity of the questions, guidance of use, and awareness of key functions such as symptom tracking graphs. CONCLUSION(S): Opportunities were identified for development of the use of Digital Patient-Reported Outcome Measures. User feedback highlighted the need for improved usability, clearer information, and increased guidance to optimise engagement. These insights inform recommendations for the development and implementation of future Digital Patient Reported Outcome Measures.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.