Evidence map›Paper›PMID 42069288›Full record

ArticleArchives of physical medicine and rehabilitation2026

Bridging Perspectives: Guiding the Selection of Patient-Centered Outcomes in Rehabilitation Learning Health Systems.

Megan E Schliep, Pamela M Dunlap, Jason Beneciuk, Julia Carpenter, Natalie F Douglas, Jessica Edelstein, Linda Ehrlich-Jones, Therese E Johnston, Samannaaz Shamsuddin Khoja, Chiung-Ju Liu and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Archives of physical medicine and rehabilitation, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Megan E SchliepDepartment of Communication Sciences and Disorders, MGH Institute of Health Professions, Boston, MA; Spaulding Rehabilitation, Boston, MA. Electronic address: mschliep@mghihp.edu.
Pamela M DunlapDepartment of Physical Therapy, University of Pittsburgh, Pittsburgh, PA.
Jason BeneciukDepartment of Physical Therapy, College of Public Health & Health Professions, University of Florida, Gainesville, FL; Brooks Rehabilitation, Jacksonville, FL.
Julia CarpenterShirley Ryan AbilityLab, Chicago, IL.
Natalie F DouglasDepartment of Communicative Disorders, University of Louisiana at Lafayette, Lafayette, LA.
Jessica EdelsteinShirley Ryan AbilityLab, Chicago, IL; Department of Physical Medicine & Rehabilitation, Northwestern University, Feinberg School of Medicine, Chicago, IL.
Linda Ehrlich-JonesShirley Ryan AbilityLab, Chicago, IL; Department of Physical Medicine & Rehabilitation, Northwestern University, Feinberg School of Medicine, Chicago, IL.
Therese E JohnstonDepartment of Physical Therapy, Arcadia University, Glenside, PA.
Samannaaz Shamsuddin KhojaDepartment of Physical Therapy, University of Pittsburgh, Pittsburgh, PA.
Chiung-Ju LiuDepartment of Occupational Therapy, College of Public Health and Health Professions, University of Florida, Gainesville, FL.
Chih-Ying LiDepartment of Occupational Therapy and Department of Population Health & Health Disparities, University of Texas Medical Branch, Galveston, TX.
Rachel A PrusynskiDepartment of Rehabilitation Medicine, University of Washington, Seattle, WA.
Fenan S RassuDepartment of Physical Medicine & Rehabilitation, The Johns Hopkins School of Medicine, Baltimore, MD.
Linda ResnikSchool of Public Health, Brown University, Providence, RI; Providence VA Medical Center, Providence, RI.
Anne ThackerayDepartment of Physical Therapy and Athletic Training, University of Utah, Salt Lake City, UT.
Lisa JuckettSchool of Health and Rehabilitation Sciences, The Ohio State University, Columbus, OH.

Funding

LeaRRN: the Learning Health Systems Rehabilitation Research NetworkP2CHD101895 · NICHD · BROWN UNIVERSITY · PI RESNIK, LINDA J. · 2020 to 2024
$6.4M
NICHD NIH HHS P2C HD101895
6 · The paper itself

Abstract

Patient-centered outcomes (PCOs) are health indicators that reflect what is meaningful and impactful to patients and are foundational to the success of learning health systems. PCO measures for rehabilitation learning health systems offer granular insights into patients' functional goals and quality of life, enabling clinicians to personalize care and researchers to evaluate what truly matters to patients. Despite their value, selecting appropriate PCO measures remains complex, requiring careful consideration of multiple shareholder perspectives. This paper, informed by discussions from the LeaRRn and CoHSTAR Summit on "The Power of Patient-Centered Outcomes in Rehabilitation Learning Health Systems," presents a framework for navigating these challenges in rehabilitation. We examine key considerations from the vantage points of patients, researchers, clinicians, and administrators that range from PCO measure feasibility, burden, and interpretability to psychometric rigor, workflow integration, and organizational priorities. Case examples illustrate how projects have engaged diverse shareholders to select PCO measures for use in clinical practice and research. The paper concludes with practical guidance for rehabilitation researchers seeking to align outcome selection with shareholder needs, optimize data utility across the learning health system cycle, and advance patient-centered care in complex rehabilitation contexts.

Indexed as

Learning Health SystemPatient-Centered CarePatient Outcome AssessmentRehabilitationHumansQuality of LifeLearning health systemsOutcome assessmentPatient-centered outcomesPatient engagementRehabilitation

Identifiers

PMID42069288
PMCPMC13474260

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.