ArticleChild: care, health and development2026
Caregiver Concerns for Children and Adolescents With Down Syndrome: A Cross-Sectional Study in Brazil.
Article in Child: care, health and development, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
aimThe aim of this study is to describe and compare areas of concern for caregivers of children and adolescents with Down syndrome across ages and explore how these areas impact their ability to participate in daily activities.
methodsOne hundred and seventeen caregivers of children and adolescents with Down syndrome, aged 0-18, participated and completed the About My Child questionnaire. Descriptive analyses of data from the caregivers were carried out. Individual item scores and the mean scores, standard deviations, median and confidence interval of the total Concern and Impact scores were calculated. Item analyses were carried out across age groups (Kruskal-Wallis test) and between children and adolescent groups (Mann-Whitney Test), aiming to explore concerns and impacts at different ages.
resultsThe lowest mean concern score for an age group was 9.27, and the highest was 12.67, with possible scores from 0 to 19. The lowest mean impact score for an age group was 2.80, and the highest was 3.25, with possible scores from 0 to 4. The items with the highest frequency of concern for most age groups were communication, participation in school and community and behaviour. The biggest impacts on participation were reported for the items concerning the use of arms and hands, sleep and hearing. No differences were found across age groups.
interpretationThis study found that caregivers of children and adolescents with Down syndrome have concerns about their child that, in total, do not change throughout life.
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