Evidence map›Paper›PMID 42063241›Full record

ArticleSociology of health & illness2026

Care Deliberations of Family Carers of People Living With Dementia-Applying an Affective-Discursive Practices Approach.

Marja Lönnroth, Ulla Halonen, Emilia Leinonen, Lina Van Aerschot

Abstract read
In one paragraph

Article in Sociology of health & illness, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Marja LönnrothFaculty of Social Sciences, University of Helsinki, Helsinki, Finland.ORCID 0009-0007-9226-7480
Ulla HalonenDepartment of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland.
Emilia LeinonenDepartment of Social Sciences and Philosophy, University of Jyväskylä, Jyväskylä, Finland.
Lina Van AerschotFaculty of Social Sciences, Tampere University, Tampere, Finland.

Funding

Academy of Finland 354791Koneen Säätiö 202203147
6 · The paper itself

Abstract

Dementia is the leading cause of care needs for older adults in Finland, with significant care contributions from families. Although not legally obliged, families often provide care driven by emotional bonds, moral obligations and practical considerations. Even though previous research has extensively explored the reasons why families provide care, analyses of their affective dimensions remain scarce. This study aims to explore these by examining the care deliberations of family carers of people living with dementia, using an affective-discursive practices approach. It focuses on how the entangled dimensions of affect, embodied experience and discourse shape their care choices, applying the approach to the written diaries of 15 Finnish adult children of people living with dementia. The approach embeds personal experiences and interactions within broader sociocultural structures. The results show how carers draw from societal norms and expectations linked to family care (e.g., devotion, duty and reciprocity) but also how they might renegotiate them to justify withdrawing from care. The analysis highlights how affective dilemmas can be approached by linking affect to discourse on a macro level, looking at societal discourses and the affective climates of care and examining how affect is mobilised in everyday interactions to make sense of care choices.

Indexed as

AffectCaregiversDementiaAdultAgedAged, 80 and overFemaleFinlandHumansMaleMiddle Aged

Identifiers

PMID42063241
PMCPMC13133426

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.