Evidence map›Paper›PMID 42060878›Full record

ReviewNeurology2026

Safeguarding Neural Data.

Michael J Young, David Simon, Barbara J Evans

Abstract readReview
In one paragraph

Review in Neurology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Michael J YoungCenter for Neurotechnology and Neurorecovery, Department of Neurology, Mass General Hospital, Boston, MA.ORCID 0000-0001-6661-0811
David SimonNortheastern University School of Law; Co-Director, Amy J. Reed Collaborative for Medical Device Safety, Boston, MA; and.
Barbara J EvansFredric Levin College of Law and Herbert Wertheim College of Engineering, University of Florida, Gainesville.ORCID 0000-0001-8115-7971

Funding

Promoting Recovery from Brain Injury with Non-Invasive Thalamic UltrasoundK23NS140495 · NINDS · MASSACHUSETTS GENERAL HOSPITAL · PI Michael J Young · 2025 to 2026
$469k
An Ethical Approach to Detecting Covert ConsciousnessF32MH123001 · NIMH · MASSACHUSETTS GENERAL HOSPITAL · PI YOUNG, MICHAEL J · 2020 to 2022
$159k
NIMH NIH HHS F32 MH123001NINDS NIH HHS K23 NS140495
6 · The paper itself

Abstract

A growing suite of neurotechnologies that capture brain activity, ranging from wearables to implanted devices, is rapidly transforming practice and research in the clinical neurosciences. States such as Colorado and California have incorporated "neural data" into their privacy laws. In addition, in September 2025, two senators introduced federal legislation, the Management of Individuals' Neural Data (MIND) Act of 2025, which defined "neural data," addressed ethical concerns about its collection and use, and directed the Federal Trade Commission to study how to regulate it. Legislative actions such as these recognize that neural data can potentially reveal unusually sensitive details about identity, cognition, and capacities that ordinary health information does not. In practice, however, neural data are heterogeneous, requiring careful consideration of their varying forms, degrees of sensitivity, and the clinical or nonclinical contexts in which they are generated. We describe the difficulties of using common tools, including data privacy and intellectual property, to regulate neural data and examine how clinicians can complement these efforts through deliberate, ethically informed safeguards in clinical practice even before regulatory frameworks are finalized.

Indexed as

BrainConfidentialityNeurosciencesPrivacyHumansIntellectual Property

Identifiers

PMID42060878
PMCPMC13276823

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.