Evidence map›Paper›PMID 42054545›Full record

ArticleJournal of medical Internet research2026

Online Community Support for Stroke Survivors and Caregivers: Scoping Review.

Putu Wuri Handayani, Kamila Alifia, Juliana Sutanto, Erlin Erlina, Sharyn Graham Davies, Arthur Hp Mawuntu, Muhammad Isman Jusuf, Narelle Warren

Abstract readScoping Review
In one paragraph

Article in Journal of medical Internet research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Putu Wuri HandayaniFaculty of Computer Science, Universitas Indonesia, Depok, Indonesia.ORCID http://orcid.org/0000-0001-5341-3800
Kamila AlifiaFaculty of Computer Science, Universitas Indonesia, Depok, Indonesia.ORCID http://orcid.org/0009-0002-7828-6320
Juliana SutantoDepartment of Human Centred Computing, Faculty of Information Technology, Monash University, Clayton, Victoria, VIC 3800, Australia, +61 399026000.ORCID http://orcid.org/0000-0002-1587-5948
Erlin ErlinaDepartment of Health Behaviour, Environment and Social Medicine, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia.ORCID http://orcid.org/0009-0004-8517-3919
Sharyn Graham DaviesSchool of Languages, Literature, Cultures and Linguistics, Faculty of Arts, Monash Univertisty, Melbourne, Victoria, Australia.ORCID http://orcid.org/0000-0001-5348-4051
Arthur Hp MawuntuDepartment of Neurology, Faculty of Medicine, Universitas Sam Ratulangi, Manado, Indonesia.ORCID http://orcid.org/0000-0003-4747-9779
Muhammad Isman JusufDepartment of Neurology, Faculty of Medicine, Universitas Negeri Gorontalo, Gorontalo, Indonesia.ORCID http://orcid.org/0009-0005-8578-6819
Narelle WarrenSchool of Social Sciences, Faculty of Arts, Monash University, Wellington Rd, Melbourne, Victoria, VIC 3800, Australia.ORCID http://orcid.org/0000-0003-2623-4078

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Previous studies found that online communities are critical in supporting stroke survivors and caregivers for stroke recovery. However, it is unclear how such online communities are designed, or could be designed. Objective: This review aims to identify the key design elements of an online community to support stroke survivors and caregivers, that is, the actors, types of community support, and supporting technologies. Methods: We used the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews (PRISMA-ScR) guidelines. We included journal articles related to online community support for stroke. Editorials, registers, opinion pieces, letters, and conference papers were excluded. Online databases PubMed/MEDLINE, Scopus, Web of Science, ScienceDirect, and ProQuest were searched for articles published from January 2015 to June 2025. Articles were screened based on the title, abstract, and full text using Covidence software. After screening and full-text review, we read the selected articles in detail to analyze and synthesize information on key actors, types of support, and technologies used to support stroke survivors and caregivers. Results: A total of 77 articles were included. These articles discussed digital support technologies (52 articles), community functions and roles (18 articles), online stroke community systems (6 articles), and the stroke ecosystem (1 article). Our review found that the online community of support for stroke survivors and caregivers includes the caregivers themselves (46 articles), health workers (24 articles), and the local community/society (14 articles). Online communities mainly provide informational support, including giving advice (28 articles) and tangible aids (29 articles), followed by social support to create a sense of belonging (26 articles). Technologies discussed included mobile health (25 articles), web-based systems (12 articles), virtual/augmented reality (8 articles), sensors/wearable technology (8 articles), video-guided exercise apps (4 articles), and telehealth/telerehabilitation/teleconsultation/telestroke (4 articles). Only one examined how cultural differences influence technology. Conclusions: Although technologies are essential in online communities of support for stroke survivors and caregivers, this review shows a lack of studies that analyze the use and role of technologies in such online communities. This could be because the key actors of the online communities are the caregivers, who mainly seek social support and therefore do not require sophisticated technology. Nevertheless, technologies such as telerehabilitation and video-guided exercise apps could be important for other actors, including the local community and health workers, to enable them to support stroke survivors and their caregivers.

Indexed as

CaregiversInternetSocial SupportStrokeSurvivorsHumansStroke Rehabilitationdigital technologyonline communityonline community assistancescoping reviewstroke

Identifiers

PMID42054545
PMCPMC13127857

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.