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ArticleClinical neuropsychiatry2026

Informal Caregivers As True Partners In Mental Health Recovery: Is It Time For A Complete Rewrite?

Shyhrete Rexhaj, Jocelyn Deloyer, Philippe Golay, Laurence Fond-Harmant, Jérôme Favrod, Charles Bonsack, Yasser Khazaal, Camille Gaglio, Alexandra Nguyen, Krzysztof Skuza and 11 more

Abstract read
In one paragraph

Article in Clinical neuropsychiatry, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Shyhrete RexhajLa Source School of Nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Lausanne.
Jocelyn DeloyerCentre Neuro Psychiatrique Saint-Martin, Dave Namur, Belgium.
Philippe GolayLa Source School of Nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Lausanne.
Laurence Fond-HarmantLekama Developpement, 33A Grand-Rue, L-3394 Roeser, Luxembourg.
Jérôme FavrodSwiss Society of Social Psychiatry (So-psy), Lausanne, Switzerland.
Charles BonsackSwiss Society of Social Psychiatry (So-psy), Lausanne, Switzerland.
Yasser KhazaalAddiction Medicine, Faculty of Biology and Medicine, University of Lausanne, Lausanne, Switzerland.
Camille GaglioLa Source School of Nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Lausanne.
Alexandra NguyenLa Source School of Nursing, HES-SO University of Applied Sciences and Arts Western Switzerland, Lausanne.
Krzysztof SkuzaHESAV School of Health Sciences - Vaud, HES-SO University of Applied Sciences and Arts Western Switzerland.
Margarita MaraitouCenter for Social and Pedagogical Support, Kepsipi, Korydallos, Greece.
Hélène WilquinAix Marseille Univ, CNRS, CRPN, Marseille, France.
Romain ReyFondation FondaMental, Créteil, France.
Spyridon ZormpasGreek Carers Network EPIONI, Athens, Greece.
Christian BurrSwiss Society of Social Psychiatry (So-psy), Lausanne, Switzerland.
Aurélie Clement-PerritazRéseau Fribourgeois en Santé Mentale, 1633 Marsens, Fribourg, Switzerland.
Romuald DroczinskiDepartment of Psychiatry, CNP-Neuchatel Psychiatric Centre, Préfargier, Marin-Epagnier, Switzerland.
Monique CorbazL'îlot, Association of relatives of people with mental health illness, Lausanne, Switzerland.
Christian PfisterSTAND BY YOU Schweiz, Nation association of relatives and confidants of people with mental illness, Switzerland.
André DecreaneSimiles, Association of Informal Carers of Persons with a Mental Ill Health in Belgium.
Donatella MarazzitiDepartment of Clinical and Experimental Medicine, Section of Psychiatry, University of Pisa, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This viewpoint highlights the indispensable role of informal caregivers in mental health recovery. The authors note that mental disorders affect around one in eight people worldwide, with major impacts on family quality of life and substantial health system costs. Informal caregivers are advocated not as peripheral supporters, but as key partners in care pathways, to be recognized in public policies and clinical practice. Scientific evidence shows their involvement reduces relapses, isolation, and hospitalization rates. This viewpoint identifies significant psychosocial risks facing informal caregivers and stresses the need for tailored support measures. The authors underscore the need for comprehensive support measures, clearer institutional recognition, ethically balanced information-sharing practices, structured educational initiatives, and more rigorous research and evaluation frameworks. Five priority areas are proposed for transforming care models: recognition, support, ethics, education, and research. Neglecting informal caregivers weakens mental health systems, whereas including them helps build more humane, effective, and resilient approaches.

Indexed as

ethicshealth policyinformal caregiversmental healthrecovery

Identifiers

PMID42052222
PMCPMC13116291

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.