Evidence map›Paper›PMID 42050766›Full record

ArticleJournal of applied research in intellectual disabilities : JARID2026

Community Implementation of a Clinician and Caregiver Co-Led Programme to Promote the Wellbeing of Family Caregivers of Individuals With Intellectual and Developmental Disabilities.

Avra Selick, Soumya Mishra, Louisa Lok Yee Man, Lee Steel, Yona Lunsky, Carly Magnacca, Melanie Penner, Jonathan Weiss, Nicole Bobbette, Kendra Thomson and 2 more

Abstract read
In one paragraph

Article in Journal of applied research in intellectual disabilities : JARID, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Avra SelickAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.ORCID https://orcid.org/0000-0003-0809-5748
Soumya MishraAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.
Louisa Lok Yee ManAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.
Lee SteelAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.
Yona LunskyAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.ORCID https://orcid.org/0000-0002-1866-9728
Carly MagnaccaAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.
Melanie PennerBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Jonathan WeissDepartment of Psychology, York University, Toronto, Canada.
Nicole BobbetteSchool of Rehabilitation Therapy, Queen's University, Kingston, Canada.
Kendra ThomsonAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.ORCID https://orcid.org/0000-0003-2161-5613
Kenneth FungDepartment of Psychiatry, University of Toronto, Toronto, Canada.
Johanna LakeAzrieli Adult Neurodevelopmental Centre, Centre for Addiction and Mental Health, Toronto, Canada.

Funding

Azrieli FoundationFondation Brain CanadaKids Brain Health NetworkPublic Health Agency of Canada
6 · The paper itself

Abstract

backgroundThis study evaluated the feasibility of implementing Caring for the Caregiver-Acceptance and Commitment Training (CC-ACT), an evidence-based programme to improve the wellbeing of caregivers of individuals with intellectual and developmental disabilities.

methodsGuided by the RE-AIM framework, this study utilised participant surveys, focus groups with programme providers and fidelity checklists to evaluate CC-ACT implementation in 11 Canadian organisations.

resultsAcross participating organisations, 18 programmes were delivered to 195 caregivers. Programme fidelity was generally high, with a mean fidelity score across organisations of 91.8%. Organisations expressed strong alignment between the CC-ACT model and their values, citing benefits of the co-facilitation approach. Participants similarly reported high acceptability of the model. However, some concerns were reported related to programme accessibility and sustainability.

conclusionCC-ACT is feasible to implement in diverse community settings, though adaptation may be required to ensure accessibility for all caregivers. Centralised infrastructure is needed for long-term sustainability.

Indexed as

CaregiversDevelopmental DisabilitiesIntellectual DisabilityAdultCanadaFeasibility StudiesFemaleHumansMaleMiddle AgedPsychological Well-Beingacceptance and commitment therapyfamily caregiversimplementationintellectual and developmental disabilitiespeer support

Identifiers

PMID42050766
PMCPMC13125383

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.